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Core Purpose

Notification by the Ministry of Social Justice and Empowerment, Department of Empowerment of Persons with Disabilities (Divyangjan), under Section 56 of the Rights of Persons with Disabilities Act, 2016, notifying comprehensive guidelines for assessing the extent of eight specified disabilities, in supersession of the 2016 and 2018 guidelines.

Detailed Summary

S.O. 1338(E) dated 12 March 2024, issued by the Ministry of Social Justice and Empowerment (Department of Empowerment of Persons with Disabilities, Divyangjan), notifies revised guidelines under Section 56 of the Rights of Persons with Disabilities Act, 2016 (49 of 2016) for assessing the extent of specified disabilities in a person, based on recommendations of expert sub-committees. The notification supersedes the Ministry's earlier notifications No. 16-21/2013-DD-III dated 25 April 2016 and No. 16-9/2014-DD-III [S.O. 76(E) dated 4 January 2018]. The guidelines, set out in the Annexure, cover eight categories of disability: Locomotor disability; Visual Impairment; Hearing Impairment and Speech & Language Disability; Specific Learning Disability, Intellectual Disability and Autism Spectrum Disorder; Mental illness; Blood Disorder; Multiple Disorder; and Chronic Neurological Disorder. Note 1 states that, under Section 57 of the Act, State Governments/Union Territory Administrations must designate qualified certifying authorities and notify their jurisdiction and the terms of certification. Note 2 designates the Director General of Health Services, Ministry of Health and Family Welfare, as the authority to resolve any controversy or doubt in interpreting the definitions, classifications, or evaluation procedures under the guidelines. The Annexure itself is highly technical: for Locomotor Disability it details Permanent Physical Impairment (PPI) evaluation for upper extremities (arm and hand components, weighted by joint -- shoulder up to 20%, elbow up to 20%, wrist up to 10%, hands up to 40% -- and by loss of range of motion, muscle strength graded 0-5 on the Medical Research Council scale, coordinated activities, prehension, sensation, and grip/pinch strength) and sets out analogous evaluation schemes and percentage tables for the other seven disability categories, plus assessment proformas and reference appendices. The notification is signed by Rajeev Sharma, Joint Secretary (F. No. P-13013/12/2023-UDID/IT/Statistics).

Full Text

1914 GI /2024 (1) रजिस्ट्री सं. डी.एल.- 33004/99 REGD. No . D. L. -33004/99 EXTRAORDINARY PART II —Section 3 —Sub-section (ii) PUBLISHED BY AUTHORITY No. 1272 ] NEW DELHI, THURSDAY , MARCH 14, 2024 /PHALGUNA 24, 1945 CG-DL-E-15032024-253066 10% 25% 10% 15% i. 10% i. ii. i. ii. iv. 2 31 से 40 5 3 21 से 30 10 4 11 से 20 15 5 5 से 10 20 2. 1.6 - 3.0 से.मी. 8 3. 3.1 - 5.0 से.मी. 16 1. 15⁰ तक 4 41-50° 10% 51-60° 20% 61-70° 30% 71-80° 40% 81-90° 50% 91-100° 60% % 0 0 0.5 3 1 7 1.5 10 2 14 2.5 17 3 20 3.5 24 4 27 4.5 31 5 35 5.5 37 6 40 % 5% 10% 5% 5% 10% 10% 10% 10% 20% 2 से 3 21 से 40% 4 से 5 41 से 60% 6 से 7 61 से 70% 8 से 9 71 से 80% 10 से 11 81 से 90% 12 91 से 100% 6/24 से 6/60 10% 0 6/18 6/24 6/36 6/60 3/60 2/60 1/6 6/18 0% 10% 10% 10% 20% 30% 30% 30% 6/24 10% 40% 40% 40% 50% 60% 60% 60% 6/36 10% 40% 40% 40% 50% 60% 60% 60% 6/60 10% 40% 40% 40% 50% 60% 60% 60% 3/60 20% 50% 50% 50% 70% 80% 80% 80% 2/60 30% 60% 60% 60% 80% 90% 90% 90% 1/60 30% 60% 60% 60% 80% 90% 90% 90% पीएल - 30% 60% 60% 60% 80% 90% 90% 100% <40°से 20° <20°से 10° <10° <40°से20° 40% 50% 60% <20°से10° 50% 70% 80% <10° 60% 80% 100% 0 to 25 0 61 41.71 26 1 62 43.42 27 1 63 45.13 28 1 64 46.84 29 1 65 48.55 30 1 66 50.26 31 1 67 51.97 32 1 68 53.68 33 1 69 55.39 34 2 70 57.1 35 3 71 58.81 36 4 72 60.52 37 5 73 62.23 38 6 74 63.94 39 7 75 65.65 40 8 76 67.36 41 9 77 69.07 42 10 78 70.78 43 11 79 72.49 44 12 80 74.2 45 13 81 75.91 46 14 82 77.62 47 15 83 79.33 48 16 84 81.04 49 17 85 82.75 50 18 86 84.46 51 19 87 86.17 52 20 88 87.88 53 21 89 89.59 54 22 90 91.3 55 23 91 93.01 56 24 92 94.72 57 25 93 96.43 58 26 94 98.14 59 27 95 100 60 40 1 0-15 2 16-30 3 31-39 4 40-55 5 56-75 6 76-89 7 90-100 0 100 98.9 97.8 96.8 95.7 94.6 93.6 92.5 91.4 90.4 1 89.3 88.2 87.2 86.1 85.0 84.0 82.9 81.8 80.8 79.7 2 78.6 77.6 76.5 75.4 74.4 73.3 72.2 71.2 70.1 69.0 3 68.0 66.9 65.8 64.8 63.7 62.6 61.6 60.5 59.4 58.4 4 57.3 56.2 55.2 54.1 53.0 52.0 50.9 49.8 48.8 47.7 5 46.6 45.6 44.5 43.4 42.4 41.3 40.0 39.2 38.1 37.1 6 36.0 34.9 33.9 32.8 31.7 30.7 29.6 28.5 27.5 26.4 7 25.3 24.3 23.2 22.1 21.1 20 18.9 17.9 16.8 15.7 8 14.7 13.6 12.5 11.5 10.4 09.3 8.3 07.2 06.1 05.1 9 4.0 2.9 1.9 0.8 00.0 00.0 00.0 00.0 00.0 00.0 ___________________________________________________ कक्षा: _____________ ___________________________________________________ "E"; " ch" के जलए "sh”; "musim" “mar” 29-40 मंि 40-59% x =𝒂+𝒃(𝟏𝟎𝟎 −𝒂) 2. 20 5-50% (कारक 3. 40 <5% (कारक 4. 45 <5% (कारक VIII या IX) 13. 90 = 0 (%) 0 3 5 8 2 2 2 2 2 3 5 0 5 0 5 0 1 0 3 0 5 0 8 0 सी (10 -15 3 0 5 0 8 0 0 3 5 8 (131- 150) 0 0 2 0 3 0 5 0 8 HbSC 40 % 40% 150) 0 2 3 5 8 5 5 2 2 2 2 2 3 5 5 5 0 1 3 5 8 ए (5 - 0 3 5 8 90- 0 3 5 8 िस्ट्तािेज़): __________________ __________________ __________________ ______________________________________________________________ _____ ___________________ तारीख : _________________ ______________________________________________________________________________ तारीख ______________________ : स्ट् र्ान ______________________ : =58% =79% नाम...............................…………………………………………… आयु ……………....................… डलंग ………......... जिभाग.....................................................................…………………………………………………………… ओपीडी पंिी .सं ................................................... जनिान .................................................. ........ ........... .................................................. पता...................... .................................................. ................................................. .………………………………………………………………… % % 30% 30% छूना 0% 3% 5% 7% 9% करना) 0% 3% 5% 7% 9% करना 0% 3% 5% 7% 9% नाम…………………………………………… जिभाग..…………………………………………………………… ओपीडी रजि .सं . .................................................. जनिान .................................................. ....... ........... .................................................. पता...................... .................................................. ................................................. .………………………………………………………………… % है 0 2 4 7 9 नाम .............................................................. egde1wonK:1roFcaF Dimension1:Vocabulary Item No Item Response Score 1 SkippingRope 012 2 Calendar 012 3 Lock 012 4 TrafficLights 012 5 Cupboard 012 6 Stapler 012 7 Axe 012 8 WeighingMachine 012 9 Nail 012 10 Cat 012 11 Table 012 12 Friend 012 13 Ocean 012 14 Magazine 012 15 Dictionary 012 16 Forest 012 17 Heavy 012 18 Relax 012 19 Disappoint 012 20 Companion 012 21 Mimic 012 Total Factor1:Knowledge Dimension2:Information Item No Response Score 1 Sunlight,Water, AirandSoil 2 Summer,Winter, Rainy,Autumn Earth 4 Beetroot,Carrot,Radis h,Potato,Turnip February Blood Liters JawaharlalNehru 9 Whenwaterisheatedtoitsbo ilingpoint,Evaporation. Chlorophyll 11 Because ofPressurizedSteam Total metI Factor1:Knowledge Dimension3:Comprehension Item No Response Score Total Factor2:FluidReasoning Dimension1:VerbalAnalogies Item No Item/correctresponse Score (Monkey:Climb::Fish :?) Swim (Monday:Week::January:?) Month (Tree:Leaf::Bird:?) Feathers/Wings (Page:Book::Leaf:?) Tree/Plant (Driver:Bus::Pilot: ?) Aeroplane (Foetus:Child::Seed:?) Plant/Tree (Pyramid:Triangle::Cube:?) Square 8 (Phone: Communication ::Aeroplane: ?)Transportation Total itpsnopteR oitabreRIe Factor2:FluidReasoning Dimension2:ObjectSeries Item No Item/Correctresponse Score 1 C 0 1 2 C 0 1 3 B 0 1 4 A 0 1 5 B 0 1 6 C 0 1 7 C 0 1 8 A 0 1 9 B 0 1 10 C 0 1 11 D 0 1 12 D 0 1 13 C 0 1 14 B 0 1 15 B 0 1 16 D 0 1 17 B 0 1 Total Factor3:QuantitativeReasoning Dimension1:Arithmetic Item No Item/C1wwFde wFsp1:sF Score 1 6 01 2 8 01 3 10 01 4 3Pencils 01 5 5 Chocolates 01 6 4 Coins 01 7 2Pencils 01 8 15Books 01 9 6Ballseach 01 10 8Kgs 01 11 9Minutes 01 12 3Apples=Rs.60 01 13 37.5 01 Total Factor4:Visual Spgeigo RFgs1:i:a Dimension 2 :Spgeigo C1:dFpes Item No Item/ correctres ponse Response(inVerbatim) Score 1 1. Left side 2. Right-side 3. Middle LeftHand Farthestleftside Leftside Road/Tree/Wall Leftside Rightside East Total Factor4:VisualSpatialReasoning Dimension2:SquareConstructio nTest Item No CorrectR Time Taken(inSec onds) Scores Above 60Sec 45 Sec Above12 0Sec 90 Sec Above12 0Sec Above12 0Sec 91-120Sec 90 Sec Above15 0Sec 1 120Sec Above17 0Sec 1 141-170 Sec 140Sec Above17 0Sec 1 141-170 Sec 140Sec Total tpsnoptp 46-60ctS 91-120ctS 91-120ctS 2 90 ctS 121- 150c tS Factor5:WorkingMemory ■ Dimension1:DigitSpanForw ard Item No Item/Correctresponse Score 1 3-8-64-2-6 01 2 2-4-1-6 6 -2-4-7 01 3 4-6-3-5-86-4-1-7-2 01 4 1-3-5-7-9-4 6 -2-5-3-1-8 01 5 7-4-6-2-5-8-32-8-3-6-4-9-1 01 6 5-2-6-4-1-3-9-73-5-4-1-6-8-2-9 01 7 4-1-5-8-3-7-2-6-9 8 -3-6-9-5-2-7-1-4 01 Total Dimension2:DigitSpanBackward Item No Item/Correctresponse Score 1 1-2 3-1 01 2 9-5-2 8-6-3 01 3 3-9-4-8 7-3-4-2 01 4 2-5-8-7-9 1-3-6-9-7 01 5 4-9-1-7-6-3 5-2-4-1-3-6 01 6 8-4-5-9-7-1-3 9-4-1-6-8-2-5 01 Total yrSenagninaoRo5rtInaF egde1wonK:1roFcaF Dimension2:Information Item No Response Score 1 Sunlight,Water, AirandSoil 2 Summer,Winter, Rainy,Autumn Earth 4 Beetroot,Carrot,Radis h,Potato,Turnip February Blood Liters JawaharlalNehru 9 Whenwaterisheatedtoitsbo ilingpoint,Evaporation. Chlorophyll 11 Because ofPressurizedSteam Total metI Factor1:Knowledge Dimension3:Comprehension Item No Response Score Total egde1w2n eouic RFgs1:i:a 2 Dimension1:VerbalAnalogies Item No Item/correctresponse Score (Monkey:Climb::Fish :?) Swim (Monday:Week::January:?) Month (Tree:Leaf::Bird:?) Feathers/Wings (Page:Book::Leaf:?) Tree/Plant (Driver:Bus::Pilot: ?) Aeroplane (Foetus:Child::Seed:?) Plant/Tree (Pyramid:Triangle::Cube:?) Square 8 (Phone: Communication ::Aeroplane: ?)Transportation Total itpsnopteR oitabreRIe Factor2:FluidReasoning Dimension2:ObjectSeries Item No Item/Correctresponse Score 1 C 0 1 2 C 0 1 3 B 0 1 4 A 0 1 5 B 0 1 6 C 0 1 7 C 0 1 8 A 0 1 9 B 0 1 10 C 0 1 11 D 0 1 12 D 0 1 13 C 0 1 14 B 0 1 15 B 0 1 16 D 0 1 17 B 0 1 Total Factor3:QuantitativeReasoning Dimension1:Arithmetic Item No Item/Correctresponse Score 1 6 01 2 8 01 3 10 01 4 3Pencils 01 5 5 Chocolates 01 6 4 Coins 01 7 2Pencils 01 8 15Books 01 9 6Ballseach 01 10 8Kgs 01 11 9Minutes 01 12 3Apples=Rs.60 01 13 37.5 01 Total Factor4:VisualSpatialReasoning Dimension1:SpatialConcepts Item No Item/ correctres ponse Response(inVerbatim) Score 1 1. Leftside 2. Rightside 3. Middle LeftHand Farthestleftside Leftside Road/Tree/Wall Leftside Rightside East Total Factor4:VisualSpatialReasoning Dimension2:SquareConstructio nTest Item No CorrectR Time Taken(inSec onds) Scores Above 60Sec 45 Sec Above12 0Sec 90 Sec Above12 0Sec Above12 0Sec 91-120Sec 90 Sec Above15 0Sec 1 120Sec Above17 0Sec 1 141-170 Sec 140Sec Above17 0Sec 1 141-170 Sec 140Sec Total tpsnoptp 46-60ctS 91-120ctS 91-120ctS 2 90 ctS 121- 150c tS Factor5:WorkingMemory ■ Dimension1:DigitSpanForw ard Item No Item/Correctresponse Score 1 3-8-64-2-6 01 2 2-4-1-6 6 -2-4-7 01 3 4-6-3-5-86-4-1-7-2 01 4 1-3-5-7-9-4 6 -2-5-3-1-8 01 5 7-4-6-2-5-8-32-8-3-6-4-9-1 01 6 5-2-6-4-1-3-9-73-5-4-1-6-8-2-9 01 7 4-1-5-8-3-7-2-6-9 8 -3-6-9-5-2-7-1-4 01 Total Dimension2:DigitSpanBackward Item No Item/Correctresponse Score 1 1-2 3-1 01 2 9-5-2 8-6-3 01 3 3-9-4-8 7-3-4-2 01 4 2-5-8-7-9 1-3-6-9-7 01 5 4-9-1-7-6-3 5-2-4-1-3-6 01 6 8-4-5-9-7-1-3 9-4-1-6-8-2-5 01 Total yrSenagninaoRo5rtInaF Factor5:WorkingMemory Dimension3:NumberNameSequence Item Item/Correctresponse Response(i Trial1 Trial2 1 2clocks 6bananas 1 doll 3pens 2 3cows 8grasshoppers 5bottles 2slates 6frocks 4bags Total sroioahruibOlBruoivaheB riorhaxEioaeruaageivrurhaxEioaeru on oitabreRIe cSnat वारभात‍n 2775 फ ‍‍ र‍n 040-27750o98 ई-मेल‍nciw:innlnc2r2s:or:Feri: ‍िेबराइट‍n www.nimhindia.org Smmrc- InfRdRtfmoSAfofRr5onpeRSenna dnaScdeSiifodmX-imme ‍ (49 nd02foe-2023 स्र्त एिां रौजन्य: http://www.bpaindia. org/EN April-JuneO6.htm iretan ____________________________fretn ______________sreRtoe _______________________n lRfSr ae tar fttrttaret fet eftoes a ftfrof elScSe 1 )tiaG e ab P taP baar P t )P i P ebsaP biP bP aborP taib lrPabebssrsPi a ebssPt lsi t cPbPlbso- iie P tiie P be i P i P oblrP ilr aa atirP terlit P oP cbti)P b P tg)P i P ebsaP t P ib rutlrrsaPi Pi ra)Petil iiPaiaa ei. 0 onaIra, on fRddRScaeRtp Ro ,raoRo5, ecaoRo5rof ,raoRo5 eroftI ecs en not IRppetsraan,tf e 1 caR5ue fRddRScaeRtp, noaF nRpRbat ,uto,raoRo5 f2 SnoptSceRnt petsp Ro eroftI 2 SatraaF rbonaIra, eroftI ,raoRo5 bf2 petsp onesnppRbat 3 SnopRftarbat per55taRo5, fRddRScaeRtp Ro urad - ecao,bce ,Reunce pcssnae 4 rraotf pe r55taRo5, RoetaIReetoe pcssnae nd eut,raa atrcRatf 5 ctntat per55taRo5, staIrotoe pcssnae nd not peRSona aR5ue pcssnae bF not raI atrcRatf 6 iraoRo5 b f2 I noaF ,Reu peano5 pcssnae ee,npstSRra peRSop na peanaata na rSSnIsroFRo5 stapno e 7 iraoRo5 n f2 I noaF ,Reu peano5 pcssnae ee,npstSRra peRSop na peanaata na rSSnIsroFRo5 stapnoe 8 dorbat en ,rao, tnto pcssnaetf 2 ) eGiatS e ab PtaPbaar Pi Paib Pt )Pt P biiebsP a atit Ptg)Petil orriPi crilrePt PabebssrsPtatcPi raPi illt cP rbllP ilre)Pb )3Ptt Pib r uPta ilPorriP P rPst r P PaablrP arierr lrrsPb Pi r).P e ab P raP iPerbeP al ra PrnraPber ar .P. ePrbllPl tit P ilerrPietbsaPberPbss er .ParaiietbsPtaPebir . 0 onaIra, rbat en perof Ro eroftI dna b f2 p 1 Sbat en perof ,Reu dtte en5teuta ,Reunce p,rF, bce one Ro eroftI dna b f2p 2 Sbat en perof ,Reu dtte en5teuta dna b f2 p, bce noaF,Reu p,rF 3 Sbat en perof dna b f2 p ,Reunce pcssnae Ro orecarasnpReRno, bce one ,Reu dtte en5teuta 4 Sbat en perof dna bf2 p Ro orecara snpReRno noaF ,ReuRoetaIReetoe pcssnae 5 Sbat en perof bf2 p Ro orecara snpReRno noaF ,Reu Snoperoe pcssnae nd not raI 6 dorbat en perof dna bf2 p tnto ,Reu Snoperoe pcssnae nd not raI cSnat cSnat 3 e cReeRo5 e ab PtaPbaar Pi PatiP Pb Prebut bit Par P etil iiaiaa eiP oPorriP rnraP ar Pb PbeuaP iiaierillr Pi Pilroe i. 0 onaIra, on fRddRScaeRtp pReeRo5 bf2 ptS 1 caR5ue fRddRScaeRtp, RoetaIReetoe p,rF 2 Snoperoe p,rF, bce rbat en pRe b f2 p ,Reunce pcssnae 4 e csttSu fRpecabroSt csttSu Rp rpptpptf fcaRo5 onaIra SnontapreRno. 0 onaIra 1 cc55tpeRno nd psttSu fRpecabroSt 2 mIsrRatf psttSu, bce trpF en coftaperof 3 dSSrpRnora ,nafp fRddRScae en coftaperof 4 rro F ,nafp fRddRScae en coftaperof 3 Sbat en pRe dna b f2 p noaF ,Reu RoetaIReetoe pcssnae 4 dorbat en pRe dna bf2 p ,Reunce CnoeRocncp pcssnae 5 doaF pRo5at ,nafp coftaperofrbat 6 csttSu coRoetaaR5Rbat n roraeuaRr cSnat cSnat iretan ____________________________fretn ______________ sreRtoe _______________________n 5 e yRo5ta Surpt iretf ptsraretaF dna trSu pRft ianbrof pRep SnIdnaerbaF. md otStppraF, pcssnae nd dtterof eacoo Rp raan,tf. f rIRota pRep Ro danoe nd sanbrofrof stadnaIp g SnoptSceRnt pcffto rof drpe snRoeRo5InntItoep Ro cosatfRSerbat RatSeRnop Ro r danoera sarot,re rbnce g2 l nd sanbrof p atrSu. rnnt Itoep urnt rorIsaRecft nd n2 SI rof r datrctoSF nd f InntItoetntaF 0 p. ianbrof Rp rpotf en dnaan, eut InntItoep,Reu uRp Roft dRo5ta, rp drpe rof satSRptaF rp snppRbat. 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SFpereRo nract Rp Inat pstSRdRS bcet5da SraScareRno ,Raa bt brptf no SatreRoRot Ro satptoe 5cRftaRotp. yna stapno atpp euro fA Ftrap , r stfRreaRS 5da SraScarena Rp en bt cptf enaitf ueespnnn,,,.oRfotF.na5nsandtppRnorapnofnrRn5da_SraScar ● md nractp dna SFpereRo S rofnna do rat one toetatf, eut SraScarena ,Raa 5totaret Iyi tpeRIretp cpRo5 eut SatreRoRot-b rptf r tfpRft cSu,raeaq trcreRno noaF eScaatoeaF SnopRftatf eut btpe Iteunf dna tpeRIreRo5 Iyi Ro SuRafato.e Pain Disability ectpeRnoorRat (PDQ) mut irRo dRprbRaReF ectpeRnoorRat eide( Rp r spFSunIteaRS tnracreRno Itrpcat nd dcoSeRnoraperecp Ro sreRtoep ,Reu SuanoRS srRo. me Sn- ataretp ,Reu suFpRSra rof spFSunan5RSra ucIrodcoSeRno esrRo RoetopReF, ftsatppRno e rof ,nao fRprbRaReF. mut srRo dRprbRaReF ectpeRnoorRat Rp r Itrpcat nd dcoSeRnora perecp rof dnScptp no fRprbRaReF,dcoSeRno, rof spFSunpnSRra nraRrbatp. muRp enna urp t Staatoe spFSunIteaRS sanstaeRtp rofSnopRpetoeaF ftInopearetp peano5 SnaatareRnop en nra Rncp suFpRSra rof spFSunpnSRra Itrpcatp. irRo dRprbRaReF ectpeRnoorRat eide( Rp ftetaIRotf bF Roftstoftoe areRo5p, no r f2- snRoe pSrat ( danI 2 psnna atatnroSt en f2 p t Staatoe atatnroSt( eerbat m.e muto eut enera snRoep SraScaretf Ro mrbat m rat Snontaetf en fRprbRaReF staStoer5tp rp pun,o Ro mrbat mm. neu erbatp rat sannRftf. mrbat mn irRo dRprbRaReF ectpeRnoorRat eidee ide rctpeRnop cSnat nseRnop ftstofRo5 no aRIRereRno nd rSeRnReRtp. ireRtoe ide rSecra snRoep 1 1 . dn tp Fnca srRoRoetadtat ,Reu FncaonaIra ,nao RopRft rofncepRft unIt 0 ( ,nao onaIraaFe 1-9 10 ( dorbat en ,nao re raae 2 dntp Fnca srRo Roetadtat ,Reu stapnora Srat epcSu rp ,rpuRo5, fatppRo5e 0 ( mrot Srat nd rFptadSnIsatetaFe 1-9 10 ( ottf utas ,Reu raa IF stapnoraSrate 3 dntp Fnca srRo Roetadtat ,Reu Fnca earntaRo5 0 ( earnta roF,utat m aRote 1-9 10 ( noaF earnta en ptt fnSenape 4 dntp Fnca srRo rddtSe Fnca rbRaReF en pRe na perof 0 ( on sanbatIpe 1-9 10 ( Sroone pRenperof re raae 5 dn tp Fnca srRo rddtSe Fnca rbRaReF en aRde nntautrf, 5arps nb tSep, na atrSu dna euRo5p ( on sanbatIpe 1-9 10 ( Sroone fn re raae 6 6 . dntp Fnca srRo rddtSe Fnca rbRaReF en aRde 0 ( on sanbatIpe 1-9 ( Sroone fn re raae nb tSep ndd eut danna, btof, penns na prcre 7 dn tp Fnca srRo rddtSe Fnca rbRaReF en ,rao na aco 0 ( on sanbatIpe ( Sroone fn re raae 8 lrp Fnca RoSnIt ftSaRotf pRoSt Fnca srRo bt5ro ( on ftSaRote 1-9 10 ( Anpe raa RoSnIte 9 dn Fnc urnt en erot srRo ItfRSreRno tntaFfrF en Snoeana Fnca srRo (on ItfRSreRno ottftfe 1-9 10 ( do srRo ItfRSreRno euanc5unce eut frFe 10 dntp Fnca srRo dnaSt Fnc en ptt fnSenap IcSu Inat euro btdnatFnca srRo bt5ro ( otnta ptt fnSenape ( ctt fnSenap ,ttoaFe 11 dntp Fnca srRo Roetadtat ,Reu Fnca rbRaReF en ptt eut stnsat,un rat RIsnaeroe enFnc rp IcSu rp Fnc,ncaf aRot 0 ( on sanbatIe 1-9 10 ( otnta ptt eutIe 12 dntp Fnca srRo Roetadtat ,Reu atSatreRnora rSeRnReRtp 0 ( on RoetadtatoSte 1-9 10 ( enera RoetadtatoSte na unbbRtp eure rat RIsnaeroe en Fnc 13 dn Fnc ottf eut utas ndFnca drIRaF rof daRtofpen SnIsatet tntaFfrF erpop e RoSacfRo5 unIt rof ,nao( btSrcpt nd Fnca srRo 0 ( otnta ottf utase 1-9 10 ( ottf utas raa eut eRIte 14 dn Fnc on, dtta Inat ftsatpptf, etopt, na ro Rncp euro btdnat Fnca srRo bt5ro 0 (on dtsatppRnonetopRnoe 1-9 10 ( ctntat ftsatppRnonro RteF 15 Sat eutat tIneRnora sanbatIp Srcptf bF Fnca srRo eure Roetadtat ,Reu Fnca drIRaF, pnSRra, rof na ,nao rSeRnReRtp 0 ( on sanbatIpe 1-9 ( ptntat sanbatIpe mnera ide pSnat md sreRtoe 5tep g na Inat snRoep Ro roF fnIrRo, eutF ,Raa ottf fnScItoereRno ,Reu pcssnaeRo5fnScItoep atSnafp. ccssnaeRo5 fnScItoereRno- dnSena’p satpSaRseRno dna srRo ItfRSRot na unpsRera rfIRppRno atSnafp, na n- pSunna na ,nao rbptoettRpI atSnafp teS . mIr5Ro5 Rd rnrRarbat. inRoep enera nd ide on srRo p 2-10 rRaf srRo p ff-70 rnftaret srRo p of-100 ctntat srRo p f2f-130 f eatIt srRo p fnf-15 mut SnontapRno nd irRo fRprbRaReF rctpeRnoorRat pSnat en fRprbRaReF 5arfRo5 Rp 5Rnto Ro mrbat mm btan,. mrbat mm SnontapRno nd irRo fRprbRaReF rctpeRnoorRat snRoep en eut fRprbRaReF pSnat ctt eut enera snRoep raaRntf danI eut rctpeRnoorRat. ctt eut ataretf fRprbRaReF pSnat dna eut sreRtoe ide snRoe aro5t. doaF not srRo fRprbRaReF pSnat Rp 5Rnto erbat en trSu sreR toe, rp sta eut btan, SnontapRno erbat. ireRtoe ide inRoep danIerbat f dRprbRaReF pSnat rppR5oItoe en bt rfftf dna sreRtoep on na IRoRIra srRo pSnat p 2 en f2 rRaf srRo p ff-70 2 rnftaret srRo p of-100 3 ctntat srRo p f2f-130 5 f eatIt srRo pfnf-150 8 - MINISTRY OF SOCIAL JUSTICE AND EMPOWERMENT [Department of Empowerment of Persons with Disabilities (Divyangjan)] NOTIFICATION New Delhi, the 12th March , 2024 S.O. 1338(E).—In exercise of the power conferred by Section 56 of the Rights of Persons with Dis abilities Act, 2016 (49 of 2016) and in supersession of notification issued vide No. 16 -21/2013 -DD-III dated 25th April, 2016 and No. 16 -9/2014 -DD-III [S.O. 76 (E) Dated 4thJanuary, 2018] of the Ministry of Social Justice and Empowerment, Department of Emp owerment of Persons with Disabilities (Divyangjan), the Central Government hereby notifies the guidelines for the purpose of assessing the extent of following specified disabilities in a person after having considered the recommendations of the sub -committ ees of experts to assess the extent of specified disabilities in a person, detailed in the ANNEXURE, namely: - i. Locomotor disability ; ii. Visual Impairment ; iii. Hearing Impairment and Speech & Language Disability ; iv. Specific Learning Disability, Intellectual Disa bility and Autism Spectrum Disorder ; v. Mental illness ; vi. Blood Disorder ; vii. Multiple Disorder ; and viii. Chronic Neurological Disorder. Note 1: - In terms of Section 57 of the Rights of the Persons with Disabilities Act, 2016 (49 of 2016), the State Government or U nion Territory Administrators or as the case may be shall designate persons, having requisite qualifications and experience, as certifying authorities, who shall be competent to issue the certificate of disability and also notify the jurisdiction within wh ich and the terms and conditions subject to which, the certifying authority shall perform its certification functions. Note 2: -The Director General of Health Services, Ministry of Health and Family Welfare, Government of India shall be the authority to dec ide upon cases where any controversy or doubt arises in matters relating to interpretation of the definitions or classifications or evaluation procedure regarding the said guidelines. [F. No. P -13013/12/2023 -UDID/IT/Statistics] RAJEEV SHARMA , Jt. Sec y. ANNEX URE Guidelines for Purpose of Assessing the Extent of Specified Disability in a Person Included under the Rights of Persons with Disabilities Act, 2016 (49 of 2016) Definition: “Locomotor disability” means a person’s inability to execute distinctive ac tivities associated with movement of self and objects resulting from affliction of musculoskeletal, nervous system, or both. SECTION A: Guidelines for Evaluation of Permanent Physical Impairment (PPI) of Extremities (Upper and Lower Extremities) 1.1. Gui delines for Evaluation of Permanent Physical Impairment (PPI) of Upper Extremities (a) The estimation and measurement shall be made when the clinical condition has reached the stage of maximum improvement from the medical treatment. Normally the time peri od is to be decided by the medical doctor who is evaluating the case for issuing the PPI Certificate as per standard format of the certificate. (b) The upper extremity is divided into two components: the arm component and the hand component. (c) Measurem ent of the loss of function of arm component consists of measuring the loss of range of motion, muscle strength and co -ordinated activities. I. LOCOMOTOR DISABILITY (d) Measurement of loss of function of hand component consists of determining the prehension, sensation and streng th. For estimation of prehension opposition, lateral pinch, cylindrical grasp, spherical grasp and hook grasp have to be assessed. (e) The impairment of the entire extremity depends on the combination of the impairments of both components. (f) Total disa bility % will not exceed 100%. (g) Disability is to be certified as whole number and not as a fraction. (h) Disability % is to be stated in relation to that extremity which has been in use in India for the past many years (in the absence of a generally a greed upon system in India of reflecting Disability % in relation with the whole body). (i) For Locomotor Disability except Section C (Permanent Physical Impairment in Persons with Amputation), Temporary Disabilities Certificate will be issued after 6 mon ths of symptoms. For permanent disability, certificate after 18 years of age, re -assessment every 10 years should be done, where requested by the PwD or recommended by a subject expert. 1.2.1. ARM (UPPER EXTREMITY) COMPONENT Total value of the arm compone nt assigned is 90%. 1.2.2. Principles of evaluation of range of motion (ROM) of joints (a) The value of maximum ROM in the arm component assigned is 90%. (b) The weightage given to involvement of different joints is as mentioned below: Shoulder = up to 20%, Elbow = up to 20%, Wrist = up to 10%, Hands = up to 40% Further calculation is done depending upon the extent of involvement (mild – less than 1/3, moderate – up to 2/3, or severe – almost total). If more than one joint of the upper extremity is invo lved, the loss of percentage in each joint is calculated separately as above and then added together. 1.2.3. Principles of evaluation of strength of muscles: (a) Strength of muscles can be tested by manual method and graded from 0 -5 as advocated by Medic al Research Council (MRC), London, UK depending upon the strength of the muscles (Appendix -I). (b) Loss of muscle power can be given percentages as follows: (i) The mean percentage of loss of muscle strength around a joint is multiplied by 0.30. (ii) If loss of muscle strength involves more than one joint the mean loss of percentage in each joint is calculated separately and then added together as has been described above for loss of range of motion. 1.2.4. Principles of evaluation of coordinated activit ies: (a) The total value for coordinated activities assigned is 90%. (b) Ten different coordinated activities should be tested as given in the Form A . (Appendix II - assessment proforma for upper extremity). (c) Each activity has been assigned a value o f 9%. (d) Average normal range of different joints for reference is at Appendix III. 1.2.5. Combining values for the Arm Component: The total value of loss of function of arm component is obtained by combining the value of loss of ROM, muscle strength an d coordinated activities, using the combining formula where a = higher value and b = lower value 1.3.1. HAND COMPONENT: (a) Total value of hand component assigned is 90%. (b) The functional impairment of hand is expressed as loss of prehension, lo ss of sensation and loss of strength. 1.3.2. Principles of evaluation of prehension: Total value of prehension assigned is 30%. It includes: (a) Opposition - 8% - Tested against - Index finger - 2% - Middle finger - 2% - Ring finger - 2% - Little finger - 2% (b) Lateral pinch - 5% - Tested by asking the patient to hold a key between the thumb and lateral side of index finger. (c) Cylindrical grasp - 6% -Tested for (i). Large object of approx. 4 inches size - 3% (ii). Small object of 1 -2 inch size - 3% (d) Spherical grasp - 6% - Tested for (i) Large object of approx. 4 inches size - 3% (ii) Small object of 1 -2 inch size - 3% (e) Hook grasp - 5% - Tested by asking the patient to lift a bag. 1.3.3. Principles of Evaluat ion of Sensations: (a) Total value of sensation in hand is 30%. (b) It shall be assessed according to the distribution given below: (i) Complete loss of sensation Thumb ray - 9% Index finger - 6% Middle finger - 5% Ring finger - 5% Little finger - 5% (ii) Partial loss of sensation: Assessment should be made according to percentage of loss of sensation in thumb/finger(s). 1.3.4. Principles of Evaluation of Strength (a) Total value of strength is 30%. (b) It includes: (i) Grip strength - 20% (ii) Pinch strength - 10% Strength of hand should be tested with hand dynamometer or by clinical method (grip method). 10% weightage to be added in case of persons with involvement ofdominant upper extremity (mostly right upper extremity) due to acquired co nditions (diseases/ injuries etc.) and not to those with congenital anomalies, conditions, loss, or deformities. For shortening of upper extremity, addition weightage is as follows: First 1" - No additional weightage For each 1" beyond the first 1" - 2% additional weightage. Additional weightage – A total of up to 10% additional weightage can be given to following accompanying factors if they are significant, continuous and persistent despite standard treatment. (i) Deformity: In functional position - 3% In non -functional position - 6% (ii) Pain: Mild (slightly interfering with function) - 3% Moderate (interfering with function) - 6% Severe (grossly interfering with function) - 9% (iii) Loss of sensations: Partial Loss – up to 6% Complete Loss - 9% (iv) Complication s: Superficial complications - 3% Deep complications - 6% Total % of PPI will not exceed 100% in any case. Disability % is to be stated in relation to that extremity which has been in use in India for the past many years (in the absence of a generally a greed upon system in India of reflecting in relation with the whole body). Disability % is to be mentioned as whole number, and not as a fraction. 1.3.5. Combining values of hand component: The final value of loss of function of hand component is obtain ed by summing up values of loss of prehension, sensation and strength. 1.3.6. Combining values for the Extremity: Value of impairment of arm component and impairment of hand component is to be computed by using the combining formula: where a = hi gher value and b = lower value. 2. Guidelines for Evaluation of Permanent Physical Impairment in Lower Extremity The measurement of loss of function in lower extremity is divided into two components, namely, mobility and stability components. 2.1.1. MOB ILITY COMPONENT Total value of mobility component is 90% which includes range of movement (ROM) and muscle strength. 2.1.2. Principles of Evaluation of Range of Movement: (a) The value of maximum range of movement in mobility component is 90% (b) The a ppropriate weightage given to involvement of proximal and middle joints is as follows: Hip= up to 35%, Knee= up to 35%, Ankle= up to 20%, Further calculation is done depending upon the extent of involvement (mild – less than 1/3, moderate – up to 2/3, or severe – almost total). If more than one joint of the limb is involved the mean loss of ROM in percentage should be calculated in relation to individual joint separately and then added together to calculate the loss of range of motion and strength in rel ation to that particular limb. 2.1.3. Principle of Evaluation of Muscle Strength: (a) The value for maximum muscle strength in the extremity is 90%. (b) Strength of muscles can be tested by Manual Method and graded 0 -5 depending upon the residual strengt h in the muscle group. (c) Manual muscle strength grading can be given percentage as below: Numerical Score of Muscle Power Qualitative Score Loss of strength in % 0 Zero 100 1 Trace activity 80 2 Poor 60 3 Fair 40 4 Good 20 5 Normal 0 (d) Mean pe rcentage of muscle strength loss around a joint is multiplied by 0.30 to calculate loss in relation to limb. (e) If there has been a loss muscle strength involving more than one joint the final value is then computed by adding up as has been described abo ve. 2.1.4. Combining values for mobility component: The value of loss of ROM and loss of muscle strength is to be computed with the help of the combining formula: where a = higher value, b = lower value. 2.2. Stability Component (a) Total value of the stability component is 90% (b) It shall be tested by clinical method as given in Form B (Assessment Proforma for lower extremity) in Appendix II. There are Ten activities, which need to be tested, and each activity has a value of nine per cent (9%). The percentage valued in relation to each activity depends upon the percentage of loss stability in relation to each activity. 2.3. Extra Points Extra points (% of impairment) are given for deformities, pain, contractures, loss of sensations and shortening etc. For Shortening (true shortening and not apparent shortening): First 1/2" - Nil Every 1/2" beyond first 1/2" - 4% Maximum extra points for associated problems such as deformity, pain, contractures etc. to be added are 10% (excluding shortening). (a) Deformity In functional position - 3% In non -functional position - 6% (b) Pain Mild (slightly interfering with function) - 3% Moderate (interfering with function) - 6% Severe (grossly interfering with function) - 9% (c) Loss of sensation Partial Loss - 6% Complete Loss - 9% (d) Complications Superficial complications - 3% Deep complications - 6% SECTION B: 3. Guidelines for Evaluation of Permanent Physical Impairment of the Spine Basic guidelines: 3.1. Permanent physical impairment cau sed by spinal injuries or deformity may change over the years, the certificate issued in relation to spine may have to be reviewed as per the standard guidelines for disability certification. 3.2. Permanent physical impairment is stated in relation to the Spine which has been in use in India for the past many years (in the absence of a generally agreed upon system in India of reflecting in relation with the whole body). 3.3 TRAUMATIC LESIONS 3.3.1 Cervical Spine Injuries: No. Cervical Spine Injuries Percentage of PPI in relation to the Spine i. 25% or more compression of one or two adjacent vertebral bodies with No involvement of posterior elements, No nerve root involvement, moderate Neck rigidity and persistent Soreness. 20% ii. Posterior ele ment damage with radiological evidence of moderate dislocation/subluxation including whiplash injury. A) With fusion healed, No permanent motor or sensory changes B) Persistent pain with radiologically demonstrable instability. 10% 25% iii. Severe Disloca tion: A) Fair to good reduction with or without fusion with no residual motor or sensory involvement B) Inadequate reduction with fusion and persistent radicular pain 10% 15% 3.3.2 Cervical Intervertebral Disc Lesions: No. Cervical Intervertebral Disc Lesions Percentage of PPI In relation to Spine i. Treated case of disc lesion with persistent pain but no neurological deficit 10% ii. Treated case of disc lesion with pain and instability 15% 3.3.3 Thoracic and Thoracolumbar Spine Injuries: No. Thoracic and Thoracolumbar Spine Injuries Percentage of PPI In relation to Spine i. Compression of less than 50% involving one vertebral body with no neurological manifestation 10% ii. Compression of more than 50% involving single vertebra or more with involvement of posterior elements, healed, no neurological manifestations persistent pain, fusion indicated 20% iii. Same as (ii) with fusion, pain only on heavy use of back 15% iv. Radiologically demonstrable instability with fracture o r fracture dislocation with persistent pain 30% 3.3.4 Lumbar and Lumbosacral Spine: Fracture No. Lumbar and/or Lumbosacral Spine Fracture Percentage of PPI In relation to Spine i. Compression of 25% or less of one or two adjacent Vertebral bodies , No definite pattern, No neurological Deficit 10% ii. Compression of more than 25% with disruption of Posterior elements, persistent pain and stiffness, healed with or without fusion, inability to lift more than 10 kgs. 20% iii. Radiologically dem onstrable instability in low lumbar or Lumbosacral spine with pain 30% 3.3.5 Intervertebral Disc lesion: No. Intervertebral Disc lesion Percentage of PPI In relation to Spine i. Treated case with persistent pain 10% ii. Treated case with pers istent pain and instability 20% iii. Treated case with persistent pain and activities of lifting moderately modified 25% iv. Treated case with persistent pain and stiffness, aggravated by heavy lifting necessitating modification of all activities r equiring heavy weightlifting 30% 4. Non -Traumatic Lesions: Scoliosis and/or Kyphoscoliosis: 4.1. Scoliosis is a condition in which an individual's spine has lateral, or side to side curvature. Although scoliosis is a three -dimensional deformity, on an x-ray, scoliosis curves can often look like a simple “S” or a “C” shape. 4.2. Scoliosis is defined with radiographs that include a standing x -ray of the entire spine antero -posterior view, as well as the lateral view. Curve magnitude is measured in degree s using the Cobb method. A straight spine has a curve of 0º; any curve greater than 10º is considered scoliosis. Between 0ºand 10º is considered "postural asymmetry" which is not true scoliosis. The lateral radiograph is used to determine the thoracic k yphosis (or round back appearance) and the amount of lumbar lordosis (swayback). 4.3. In general, the severity of the scoliosis depends on the degree of the curvature and whether it adversely affects functioning of vital organs, specifically the lungs and heart. The percentage of Permanent Physical Impairment is calculated as follows: Group Cobb Angle % of permanent physical impairment Group 1 10-20 degrees 1 to 5% Group 2 21-30 degrees 6 to 9% Group 3 31-50 degrees 10 to 19% Group 4 51-75 degrees 20 to 29% Group 5 76-100 degrees 30 to 39% Group 6 101-125 degrees 40 to 60% Group 7 126 degrees or greater 61 to 70% 4.4. A person with scoliosis or kyphoscoliosis should be assessed for cardiorespiratory limitations if present. Additional weighta ge in % of permanent is to be given according to severity of involvement as assessed clinically or relevant investigations mentioned in the Guidelines under respective section. 4.5. In cases with scoliosis of severe type cardiopulmonary function tests and percentage deviation from normal shall be assessed by one of the following simple methods whichever seems more reliable clinically at the time of assessment. The value thus obtained shall be added by combining formula. (a) Chest Expansion Chest expansio n is a simple, inexpensive, and non -invasive clinical/bedside test for assessing chest mobility. Its intra - rater and inter -rater reliability have been largely demonstrated in healthy populations and in individuals with respiratory disease. A correlation be tween chest expansion and lung function has been reported in subjects with ankylosing spondylitis, pneumothorax, pleural effusion, asbestos -related pleural fibrosis, and chest wall distortion. Chest expansion is to be measured using a measuring tape at 2 d ifferent levels of the rib cage. The anatomical markers used to define upper chest expansion are the third intercostal space at the level of the clavicular line and the spinous processes of the fifth thoracic vertebrae. To define lower chest expansion, the tip of the xiphoid process and the spinous process of the tenth thoracic vertebrae are used as markers. Instructions are given to the subjects and the procedure is demonstrated to ensure adequate understanding. The 2 measurements of chest diameter are tak en at the end of deep inspiratory and expiratory manoeuvres. Upper and lower chest expansions are obtained by subtracting the inspiratory diameter from the expiratory diameter, according to the designated anatomical markers. Subjects are sitting with their arms at their sides, with the trunk and chest uncovered. The examiner performs 1 measurement of upper chest expansion and then 1 measurement of the lower chest expansion consecutively, holding the measuring tape at both ends with thumb and index finger ar ound the subject’s body. The measuring tape has to be snug but not tight. In the absence of another standardised universally acceptable method with respect to chest expansion and the extent of physical impairment, the following is proposed as it has been i n use for past many years. No. Maximum Chest Expansion %Permanent Physical Impairment 1. More than 4 cm Nil 2. 3 cm. to 4 cm. 5 3. 2 cm. to less than 3 cm 10 4. 1 cm. to less than 2 cm 15 5. Less than 1 cm. 20 (b) Counting in a single breath: It is a simple non -invasive clinical/bedside screening test sometimes used to assess respiratory muscle strength. It is performed by inhaling maximally and counting as far/high a number as possible in normal voice in a single breath. Two attempts may be record ed following a one -minute rest in between measurements. It may be useful when formal Vital Capacity measurement is difficult or not possible. In the absence of a standardised universally acceptable method with respect to single breath count, the following is proposed as it has been in use for past many years. No. Single breath count (SBC) % Permanent Physical Impairment 1 More than 40 Nil 2. 31 to 40 5 3. 21 to 30 10 4. 11 to 20 15 5. 5 to 10 20 6. Less than 5 25 The additional weightage is to be a dded using combining formula: where a = higher value, b = lower value. 4.6. Torso Imbalance: In addition to the above PPI should also be evaluated in relation the torso imbalance. In the absence of a standardised universally acceptable method with respect to torso imbalance, the following is proposed as it has been in use for past many years. The torso imbalance should be measured by dropping a plumb line from C7 spine and measuring the distance of plumb line from gluteal crease. No. Deviation of Plumb line %of Permanent Physical Impairment 1. Up to 1.5 cm 4 2. 1.6 – 3.0 cm 8 3. 3.1 – 5.0 cm 16 4. 5.1cm or more 32 No. Head Tilt over C7 spine %of Permanent Physical Impairment 1. Up to 15⁰ 4 2. More than 15⁰ 10 Associated Problems as given below: To be added directly but the total value of PPI in relation to trunk should not exceed 100%. (a) Pain No. Extent of Activity (ADL*) Limitation %ofPermanent Physical Impairment 1. Mild limitation of ADLs 4 2. Moderate limitation of ADLs 6 3. Severe limitation of ADLs 10 * ADL - Activities of Daily Living (b) Cosmetic Appearance: - no obvious disfiguration with clothes on - Nil - mild disfigurement - 2% - severe disfigurement - 4% (c) Leg Length Discrepancy: - First1/2" shortening - Nil - Every1/2" beyond first1/2" - 4% (d) Neurological deficit - Neurological deficit should be calculated as per established method of evaluation of PPI in such cases. Value thus obtained should b e added using the combining formula. 4.7. Kyphosis: Kyphosis is a larger -than-normal forward bend in the spine, most commonly in the upper back. The normal range of thoracic kyphosis (according to the Scoliosis Research Society) is between 20° -40°, and an y curvature higher than 40° is considered abnormal. Evaluation should be done on the similar guidelines as used for scoliosis stated above with the following modifications: Spinal Kyphotic Deformity Permanent Physical Impairment Less than 40⁰ Nil 41-50⁰ 10% 51-60⁰ 20% 61-70⁰ 30% 71-80⁰ 40% 81-90⁰ 50% 91-100⁰ 60% 4.8. Torso Imbalance - Plumb line dropped from external ear normally falls at ankle level. The deviation from normal should be measured from ankle anterio r joint line to the plumb line. Distance from ankle anterior joint line to the plumb line % of permanent physical impairment Less than 5 cm Up to 4% 5 to 10 cm Up to 8% depending on distance 10 to 15 cm Up to 16% depending on distance More than 15 cm Up to 32% depending on distance It is added directly. 4.9. Miscellaneous conditions: Those conditions of the spine which cause stiffness and pain etc. but are not listed above are rated as follows: No. Condition % of permanent physical impairment 1. Subjective symptoms of pain, no involuntary muscle spasm, not substantiated by demonstrable structural pathology Nil 2. Pain, persistent muscles spasm and stiffness of spine, substantiated by mild radiological changes, and regular need for treatment (medi cations and non - pharmacological measures) 20 3. Same as ii. above with moderate radiological changes and regular need for treatment (medications and non -pharmacological measures) 25 4. Same as ii. above with severe radiological changes involving any one of the regions of spine and regular need for treatment (medications and non - pharmacological measures, interventions) 30 5. Same as iv. above involving the whole spine and regular need for treatment (medications and non -pharmacological measures, interventi ons) 40 SECTION C: 5. Guidelines for Evaluation of Permanent Physical Impairment in Persons with Amputation (Amputees): 5.1. Basic Guidelines: (a) In cases of multiple amputees, the % of permanent impairment is to be computed by using the combining fo rmula: Where a = higher value, b = lower value. (b) If the stump is unfit for satisfactorily fitting the prosthesis, an additional weightage of 5% should be added to the value. (c) Any complication in form of stiffness of proximal joint, neuroma, infection, etc., should be given up to a total of 10% additional weightage. (d) Involvement of dominant upper limb (right upper limb in majority of individuals) in acquired amputation should be given 10% additional weightage. 5.2. Upper Limb Amputations: No. Level of Upper Limb Amputation % of permanent physical impairment 1. Fore-quarter amputation 100 2. Shoulder Disarticulation 90 3. Trans Humeral (Above Elbow) up to upper 1/3 of arm 85 4. Trans Humeral (Above Elbow) up to lower 1/3 of arm 80 5. Elbow disarticulation 75 6. Trans Radial (Below Elbow) up to upper 1/3 of forearm 70 7. Trans Radial (Below Elbow) up to lower 1/3 of forearm 65 8. Krukenberg Operation or Amputation 65 9. Wrist disarticulation 60 10. Hand through carpal bones 55 11. Partial amputation of hand (at the level of shafts of all the metacarpals); thumb intact 30 12. Thumb through C.M. or though 1st MC joint 30 13. Thumb disarticulation through metacarpophalangeal Joint or through proximal phalanx 25 14. Thumb disartic ulation through inter phalangeal joint or through distal phalanx 15 15. Amputation through Proximal phalanx or Disarticulation through MP joint of Index finger 15 Amputation through Proximal phalanx or Disarticulation through MP joint of Middle finger 5 Amputation through Proximal phalanx or Disarticulation through MP joint of Ring finger 3 Amputation through Proximal phalanx or Disarticulation through MP joint of little finger 2 16. Amputation through Middle phalanx or Disarticulation 10 through PIP joint of Index finger Amputation through Middle phalanx or Disarticulation through PIP joint of Middle finger 4 Amputation through Middle phalanx or Disarticulation through PIP joint of Ring finger 2 Amputation through Middle phalanx or Disarticul ation through PIP joint of little finger 1 17. Amputation through Distal phalanx or disarticulation through DIP joint of Index finger 5 Amputation through Distal phalanx or disarticulation through DIP joint of Middle finger 2 Amputation through Dist al phalanx or disarticulation through DIP joint of Ring finger 1 Amputation through Distal phalanx or disarticulation through DIP joint of little finger 1 5.3. Lower Limb Amputations: No. Level of Lower Limb Amputation % of permanent physical impairm ent 1. Hind quarter 100 2. Hip disarticulation 90 3. Trans Femoral (Above knee) up to upper 1/3 of thigh 85 4. Trans Femoral (Above knee) up to lower 1/3 of thigh 80 5. Through knee 75 6. Trans Tibial (Below Knee) up to upper 1/3 of leg 70 7. Trans Tibial (Below Knee) up to lower 1/3 of leg 60 8. Through ankle 55 9. Syme's 50 10. Up to mid -foot (proximal to tarso -metatarsal joints level) 40 11. Up to forefoot (distal to tarso -metatarsal joints level) 30 12. Loss of all toes 20 13. Loss of first toe 10 14. Loss of second toe 4 15. Loss of third toe 3 16. Loss of fourth toe 2 17. Loss of fifth toe 1 6. Guidelines for Evaluation of Permanent Physical Impairment of Congenital deficiencies of the extremities Congenital limb deficiency simply me ans the partial or total absence of a limb at birth. These may be sporadic or syndromic. A variety of limb classification systems have been used over the years. The current and accepted form of classification that has been adopted internationally since 19 98 is the ISPO (International Society for Prosthetics and Orthotics) classification system. Common examples of congenital limb deficiencies include congenital femoral deficiency, proximal focal femoral deficiency and congenital tibial deficiency in lower limb and congenital radial longitudinal deficiency (radial club hand) and congenital ulnar longitudinal deficiency in upper limb. TRANSVERSE DEFICIENCIES 6.1. Functionally congenital transverse limb deficiencies are comparable to acquired amputations and can be called synonymously as congenital amputation. However, in some cases revision of amputation is required to fit in prosthesis. 6.2. The transverse limb deficiencies therefore should be assessed on basis of the guidelines applicable to the evaluatio n of PPI in cases of amputees as given in the preceding chapter. Level % of permanent physical impairment Transverse deficiency Rt. Arm complete (shoulder disarticulation) 90% Transverse deficiency at thigh complete (hip disarticulation) 90% Transverse deficiency Proximal Upper arm (Above elbow) 85% Transverse deficiency at lower thigh (Above knee, Lower 1/3) 80% Transverse deficiency forearm complete (elbow disarticulation) 75% Transverse deficiency lower forearm (Below Elbow) 65% Transverse defici ency carpal complete (wrist disarticulation) 60% Transverse deficiency Metacarpal complete (Disarticulation through carpal bones) 55% LONGITUDINAL DEFICIENCIES Basic Guidelines 6.3. In cases of longitudinal deficiencies of limbs, due consideration shal l be given to functional impairment. 6.4. In upper limb, loss of ROM, loss muscular strength and hand functions like prehension, etc shall be tested while assessing the case for PPI. 6.5. In lower limb clinical method of stability component and shortenin g of lower limb shall be given due weightage. 6.6. Apart from functional assessment, the lost joint/part of body should also be valued as per distribution given in the Guidelines for Evaluation of PPI in upper extremity and lower extremity amputation. The values so obtained shall be added with the help of combining formula. 6.7. In cases of loss of single bone in forearm the evaluation shall be based on the principles of evaluation of Arm component which include Evaluation of ROM, Muscle strength -and coor dinated activities. The values so obtained shall be added together with the help of combining formula. 6.8. In cases of loss of single bone in leg the evaluation should be based on the principles of evaluation of mobility component and stability component s of the lower extremity. The values obtained should be added together with the help of combining formula. SECTION D: Guidelines for Evaluation of permanent physical impairment in persons with Club Foot and a few other locomotor conditions 7. Club Foot: Clubfoot is a common deformity of the foot. It is most often noticed at birth. However, similar looking deformity can be seen in a few other conditions as well. Deformity may be mild, moderate, or severe. Severity of Clubfoot Deformity is commonly asse ssed in clinical settings in India using a Scoring method developed by Shafique Pirani. It is based on six clinical signs (three signs of hind foot and three signs of mid -foot). Each sign is scored 0 (normal), 0.5 (mildly abnormal) or 1 (severely abnormal) . The amount of deformity is “scored” and recorded as “Hindfoot Score”, “Midfoot Score” and as a summed “Total Score”. The Hindfoot Score (HS) is the sum of the scores for Posterior Crease (PC), Rigid Equinus (RE), and Empty Heel (EH). HS value is a measu rement of contracture posteriorly from 0 (no deformity) to 3 (severe deformity). The Midfoot Score (MS) is the sum of the scores for Medial Crease (MC), CLB, and Lateral Head of Talus (LHT). MS value is measurement of contracture medially from 0 (no defor mity) to 3 (severe deformity). The Total Score (TS) is a sum of the HS and MS. TS value is measurement of overall deformity from 0 (no deformity) to 6 (severe deformity). In the absence of a standardised universally acceptable method with respect to clu b foot, the following scoring system using Pirani Severity Score is proposed for calculating permanent physical impairment as it has been in use for the past few years. Total Score % of Permanent Physical Impairment 0 0 0.5 3 1 7 1.5 10 2 14 2.5 17 3 20 3.5 24 4 27 4.5 31 5 35 5.5 37 6 40 Note: (i) Disability is to be certified as whole number and not as a fraction. (ii) Disability is to be certified in relation to that lower extremity as it has been in use in India for the past many years (in the ab sence of a generally agreed upon system in India of reflecting in relation with the whole body). (iii) . In cases with bilateral involvement, % PPI is calculated for each side and then combining formula is used. (iv) Total disability % will not exceed 100%. 8.1. Lymphoedema: Chronic lymphedema is an important condition regardless of if it is classified as primary or secondary and cannot simply be described as an accumulation of protein -rich fluid. It is a chronic degenerative and inflammatory process affecting th e soft tissues, skin, lymph vessels and nodes and may result in severe and often disabling swelling. Lymphedema may present in the extremities, trunk, abdomen, head and neck and external genitalia and can develop anytime during the course of a lifetime in primary cases; secondary cases may occur immediately following the surgical procedure or trauma, within a few months, a couple of years, or twenty years or more after treatment. 8.2. Its severity is assessed and graded as follows: • Grade 1 : 5% to 10% i nterlimb discrepancy in volume or circumference at point of greatest visible difference; swelling or obscuration of anatomic architecture on close inspection; pitting oedema. • Grade 2 : More than 10% to 30% interlimb discrepancy in volume or circumference at point of greatest visible difference; readily apparent obscuration of anatomic architecture; obliteration of skin folds; readily apparent deviation from normal anatomic contour. • Grade 3 : More than 30% interlimb discrepancy in volume; lymphorrhea; gr oss deviation from normal anatomic contour; interfering with activities of daily living. • Grade 4 : Progression to malignancy (e.g., lymphangiosarcoma); amputation indicated; disabling lymphedema. In the absence of a standardised universally acceptable m ethod with respect toLymphoedema, the following method is proposed for calculating permanent physical impairment as it has been in use for the past few years. Lymphoedema Grade Permanent Physical Impairment 1 Less than 10% 2 10 – 39% depending on severi ty within this grade 3 40 – 50% depending on severity within this grade 4 51 to 70% depending on severity within this grade Note: (i) Disability is to be certified as whole number and not as a fraction. (ii) Disability is to be certified in relation to that ex tremity as it has been in use in India for the past many years (in the absence of a generally agreed upon system in India of reflecting in relation with the whole body). (iii) . In cases with bilateral/ more than one limb involvement, % PPI is calculated for ea ch limb and then combining formula is used. (iv) Total disability % will not exceed 100%. 9. Charcot’s Joint Charcot joint or neuropathic joint, or Charcot arthropathy is a progressive condition of the musculoskeletal system that is characterized by joint d islocations, pathologic fractures, and debilitating deformities. The hallmark deformity associated with this condition is midfoot collapse, described as a “rocker -bottom” foot. Charcot arthropathy results in progressive destruction of bone and soft tissu es at weight bearing joints; in its most severe form, it may cause significant disruption of the bony architecture. Charcot arthropathy can occur at any joint; however, it occurs most commonly in the lower extremity, at the foot and ankle. The Charcot fo ot has been documented to occur as a consequence of various peripheral neuropathies; however, diabetic neuropathy has become the most common etiology. Numerous classification systems exist for the categorization of the Charcot foot according to the severi ty/location and complexity of the condition. Most of the classification systems of Charcot foot include radiographic and anatomical findings; however, Lee C Roger’s classification is based on the stage/complexity and location of the Charcot foot deformity, which offers a more prognostic view of the condition. In addition, this classification system depicts the risk factors for amputation with increasing severity and location of Charcot foot deformity. In the absence of a standardised universally acceptable method with respect to Charcot’s Joint, the following method is proposed for calculating permanent physical impairment using Lee C Roger’s classification as it has been in use for the past few years. Location and Stage Forefoot Midfoot Rearfoot/Ankle Acute Charcot without deformity 15% 20% 25% Charcot with deformity 20% 25% 30% Charcot with deformity and ulceration 30% 35% 40% Charcot with deformity and osteomyelitis 40% 45% 50% Note: (i) Disability is to be certified as whole number and not as a fract ion. (ii) Disability is to be certified in relation to that extremity as it has been in use in India for the past many years (in the absence of a generally agreed upon system in India of reflecting in relation with the whole body). (iii) . In cases with bilateral l imb involvement, % PPI is calculated for each limb and then combining formula is used. (iv) Total disability % will not exceed 100%. SECTION E: 10. Guidelines for Evaluation of Locomotor Disability due to chronic Neurological conditions. Basic Guidelines: 10.1. Assessment in neurological conditions is not the assessment of disease but the assessment of its effects, i.e., clinical manifestations. 10.2. These guidelines shall only be used for central and upper motor neurone lesions. 10.3. For assessment o f lower motor neurone lesions, muscular disorders and other locomotor conditions, methods of evaluation as mentioned above will be used. 10.4. Normally any neurological assessment for the purpose of certification has to be done six months after the onset of disease; however, exact time period is to be decided by the Medical Doctor who is evaluating the case and has to recommend the review of certificate as given in the standard format of certificate. 10.5. Total percentage of physical impairment in any ne urological condition shall not exceed 100%. 10.6. In mixed cases the highest score will be taken into consideration. The lower score will be added to it using the combining formula: where a = higher value, b= lower value. 10.7. Additional rating of 10% will be given for involvement of dominant upper extremity in cases with acquired condition. 10.8. Additional weightage up to 10% can be given for loss of sensation in each extremity but the total physical impairment should not exceed 100%. Motor Sys tem Disability 11. Stroke 11.1. There are a number of Scales reported in scientific literature. The modified Rankin Scale (mRS) is one of these scales that is commonly used for measuring the degree of disability or dependence in the daily activities of p eople who have suffered a stroke or other causes of neurological disability. It is a single item, global outcomes rating scale. The Scale runs from 0 -6, running from perfect health without symptoms to death. 11.2 In the absence of a standardised univers ally acceptable method with respect to Stroke, the following method is proposed for calculating permanent physical impairment using the modified Rankin Scale (mRS) as it has been in use for the past few years. mRS Score Features % of Permanent Physical Impairment 0 No symptoms at all Nil 1 No significant disability despite symptoms; able to carry out all usual duties and activities Up to 30% depending on the extent of deficits 2 Slight disability: unable to carry out all previous activities, but able to look after own affairs without assistance 40%-50% 3 Moderate disability: requiring some help, but able to walk without assistance 51% - 60% 4 Moderately severe disability: unable to walk without assistance and unable to attend to own bodily needs withou t assistance 61% - 80% 5 Severe disability: bedridden, incontinent and requiring constant nursing care and attention more than 80% 6 Dead Not applicable 12. Other Chronic Neurological Disabilities/Conditions 12.1. Parkinsonism Parkinsonism is an imp ortant disorder of movement due to involvement of basal ganglia, extra -pyramidal system. It commonly manifests as motor symptoms and non -motor symptoms. Common motor symptoms include tremors, rigidity, slowness of movements, imbalance, gait impairments etc . These impairments are often noticed to progress over time with increasing disability. A large number of scales exist in clinical domains, but there is little universal agreement on the best choice of scale for disability evaluation. In the absence of a s tandardised universally acceptable method with respect to Parkinsonism related disability, the following simple method, adapted from some important published guidelines, is proposed for calculating permanent physical impairment: Criteria for Rating Impairm ents of the Upper Extremity: No. Features % of Permanent Physical Impairment 1. Individual can use the involved extremity for ADLs involving gross movements but has difficulty with fine movement control of fingers (digital dexterity) Nondominant limb = 20 % Dominant limb = 30% 2. Individual can use the involved extremity for basic ADLs, can grasp and hold objects with difficulty, but lacks fine movement control of fingers (digital dexterity) Nondominant limb = 30% Dominant limb = 40% 3. Individual can use the involved extremity only as a gross assist in basic ADLs Nondominant limb = 40% Dominant limb = 50% 4. Individual cannot use the involved extremity for basic ADLs Nondominant limb = 50 % Dominant limb = 60% Criteria for Rating Impairments of the Stat ion, Gait and Lower Extremities: No. Features % of Permanent Physical Impairment 1. Individual can rise to standing position, can walk unassisted but has difficulty with elevations, stairs, uneven surfaces, getting up from chairs with more depth, does not fall, and/or walking long distances Up to 30% 2. Individual can rise to standing position, can walk some distance with difficulty and without assistance, but is limited to level surfaces, falls are uncommon Up to 40% 3. Individual rises and maintains s tanding position with difficulty, cannot walk without assistance, sometimes falls down Up to 50% 4. Individual cannot stand without help, mechanical support, and/or an assistive device, falls are frequent Up to 60% In a person with significant involvemen t of upper and lower limbs, the percentage of disability is calculated by applying the combining formula: where a = higher value, b= lower value. The disability is expressed in relation to whole body. 12.2. Extent of Sensory Deficit Physical Impair ment In the absence of a standardised universally acceptable method with respect to disability due to sensory deficits, the following simple method, adapted from some important published guidelines, is proposed for calculating permanent physical impairmen t: No. Features % of Permanent Physical Impairment 1. Anaesthesia Up to 10% for each limb 2. Hypoaesthesia Depending upon % of loss of sensation 3. Paraestheis Up to 30% depending upon loss of sensation Extent of Bladder function Deficit Percentage of physical impairment Mild (Hesitancy, Frequency) * 20% (Picture in Mobile) Moderate (Precipitancy)* 30% Severe (occasional but recurrent incontinence) * 40% Very severe (Retention/Total incontinence) * 50% * Definitions of bladder dysfunction Terms Definitions Frequency  Increased frequency is defined as those children who void  8 per day.  Decreased frequency is defined as those children who void  3 per day Urgency Sudden and unexpected experience of an immediate and compelling need to void. This term is not applicable before the attainment of bladder control Hesitancy Difficulty in initiating voiding when the child is ready to void Precipitancy Also known as urinary incontinence. Defined as involuntary leakage of urine Austin PF et al The standar dization of terminology of lower urinary tract function in children and adolescents: Update report from the standardization committee of the International Children's Continence Society. Neurourol Urodyn. 2016. 12.3. Ataxia (Cerebellar) Refer to chronic ne urological disorders (25.4.2) Disability is expressed in relation to whole body SECTION F: 13. Spinal Cord Injuries 13.1. The resulting impairment and disability after Spinal Cord Injury (SCI) is typically significant and devastating. The determination o f impairment and disability after SCI is usually straightforward and may be accomplished by general categorization of an individual’s neurologic and functional level. Although secondary medical difficulties, such as pressure ulcers, spasticity, deep venous thrombosis, heterotopic ossification, myopathic pain syndromes, restrictive pulmonary compromise etc., which may impact both impairment and disability, can arise at any time after SCI, neurologic and functional abilities are typically stabilized by twelve months. 13.2. Documenting impairments in a person with an SCI is best determined by performing a standardized neurological examination as endorsed by the International Standards for Neurological Classification of Spinal Cord Injury (ISNCSCI) Patients. Pe rsons with Spinal Cord Injury are graded on the ASIA (American Spinal Injury Association) Impairment Scale. The ASIA Impairment Scale: Level - Type Features A = Complete No motor or sensory function is preserved in the S4 -S5 segments. B = Incomplete Sensory but not motor function is preserved below the neurological level and includes intact S4 -S5 segments (light touch or pinprick at S4 -S5 or deep anal sensation) and no motor function is preserved more than three levels below the motor level on either sid e of the body. C = Incomplete Motor function is preserved below neurological level, and more than half of the key muscles below the neurological level have a muscle grade D = Incomplete Motor function is preserved below neurological level, and at least h alf (half or more) of the key muscles below the neurological level have a muscle grade >3. E = Normal If sensation and motor function as tested with the ISNCSCI are graded as normal in all segments, and the patient had prior deficits, then the AIS grade i s E. Someone without a SCI does not receive an AIS grade. 13.3. The individuals with SCI may be categorized into one of the four main categories for the purpose of neurogenic bladder related disability evaluation and certification: Bladder dysfunction ma y be assessed under Extent/Natureof Bladder function Deficit Percentage of physical impairment Mild (Hesitancy, Frequency) * 20% Moderate (Precipitancy)* 30% Severe (occasional but recurrent incontinence) * 40% Very severe (Retention/Total incontinenc e) * 50% * Definitions of bladder dysfunction Terms Definitions Frequency  Increased frequency is defined as those children who void  8 per day  Decreased frequency is defined as those children who void  3 per day Urgency Sudden and unexpected experien ce of an immediate and compelling need to void. This term is not applicable before the attainment of bladder control Hesitancy Difficulty in initiating voiding when the child is ready to void Precipitancy Also known as urinary incontinence. Defined as in voluntary leakage of urine Neurological status: No. Diagnostic Category % of permanent physical impairment 1. Tetraplegia (or more specifically, bilateral severe loss of upper extremity function plus the presence of paraplegia Neurological level C5 or ab ove Neurological level C6 or below Up to 90% Up to 80% 2. Paraplegia Neurological level T6 or above Neurological level between T7 and T10 Neurological level T11 or T12 Up to 70% Up to 65% Up to 60% 3. Cauda equine syndrome without bladder or bowel dy sfunction Up to 40% 4. Cauda equine -like syndrome with bowel or bladder impairment such as lumbosacral plexopathies Up to 60% (a) Tetraplegia replaced the term quadriplegia in 1992. (b) Terms such as tetraparesis, quadriparesis, paraparesis are to be a voided. (c) Additional weightage of up to 20% is given for presence of significant neuropathic pain, spinal deformity, spasticity, contracture, heterotopic ossification, pressure ulcer etc. depending on severity, and added to the permanent physical impair ment % computed as above. (d) Total disability % will not exceed 100%. (e) Disability is to be certified as whole number. (f) Disability is expressed in relation to whole body. SECTION G: 14. Acid Attack Victims 14.1. Definition "acid attack victims" means a person disfigured due to violent assaults by throwing of acid or similar corrosive substance. 14.2. Acid attacks cause chemical burns. Acids cause coagulation necrosis with precipitation of proteins. They can cause lifelong bodily disfigurement. T he medical effects of acid attacks are generally extensive. Acids used in acid attacks may be acetic acid, carbolic acid, chromic acid, formic acid, sulphuric acid, nitric acid, hydrochloric acid, hydrofluoric acid, oxalic acid, phosphoric acid etc. The se verity of the damage depends on the concentration of the acid and the time before the acid is thoroughly washed off with water or neutralized with a neutralizing agent. The acid can rapidly eat away skin, the layer of fat beneath the skin, and in some case s even the underlying bone. 14.3. Impairments resulting from acid burns are not restricted to the skin. Often, more than one system is involved, such as skin, musculoskeletal, respiratory, vision etc. Scarring represents a special type of disfigurement. S cars affect sweat glands, hair growth, and nail growth, and cause pigment changes or contractures and may affect loss of performance and cause impairment. The lymphatic system can be affected in the lower or upper extremity, causing chronic swelling of the leg and feet, or the arm and hand respectively. 14.4. Since majority of acid attacks are aimed at the face, eyelids and lips may be completely destroyed, the nose and ears severely damaged. Acid can quickly destroy the eyes, blinding the victim. The eyel ids may no longer close, the mouth may no longer open, and the chin may become welded to the chest. 14.5. Given below are the frequently noted physical consequences of acid attacks: Skull: May be partly destroyed or deformed. Hair is often lost. Forehead : Skin may shrink, as though stretched tightly, and be scarred. Ears: Shrivelled up and deformed. Deafness may occur immediately or later. Cartilage in the ear is usually partly or totally destroyed, exposing the victim to future infection and hearing los s. Eyes: Direct acid contact or acid vapors can damage eyes, causing blindness. Even if the eyes survive the acid attack, they remain vulnerable to other threats which can cause blindness during the victim’s recovery. Eyelids may have been burned off, or may be deformed by scarring, leaving the eyes to dry up and go blind. This is very difficult to prevent. Nose: Shrunken and deformed. Nostrils may close completely because the cartilage is destroyed. Cheeks: Scarred and deformed. Mouth: Shrunken and nar rowed and may lose its shape. Lips may be partly or totally destroyed. Lips may be permanently flared, exposing the teeth. Movement of the lips, mouth and face may be impaired. Eating can be difficult. Chin: Scarred and deformed. The scars may run downwar d, welding the chin to the neck or chest. Neck: Often badly damaged. It may have a thick cord of scarred flesh running down from the chin to the upper chest, or a wide, heavily scarred area on one side of the neck. Victim may be unable to extend the neck, or the head may constantly lean to one side. Chest: Often badly scarred. The chest may have narrow lines of scars or wide patches of scars from acid splashes or drips. In girls and young women, the development of their breasts may be stopped, or their br easts may be destroyed completely. Shoulder: May be badly scarred, especially around the underarm, which may limit the victim’s arm movement. In some cases, one or both of the victim’s upper arms may be stuck like glue to the sides of their body. 14.6. Disability in acid attack victims is to be estimated by taking into consideration extent of damage in terms of area and depth, as is in cases of thermal injuries (burns). Good colour photography with multiple views of the area of involvement enhances the d escription. Every acid burn, regardless of the depth of injury, heals with some element of contracture. Contractures may require a series of staged surgical procedures before optimal function and cosmesis are achieved. Scar tissue is less tolerant of the everyday stress imposed on it than normal skin. An extremity can be considered impaired even if it has a full range of motion because of a poor quality of skin after the chemical burn - skin that is thin and fragile, likely to ulcerate easily even with mi nor injuries. Even people who have received skin grafts can have intolerance to sunshine, heat, cold or sensation. 14.7. Restriction of normal movement by contracture is not limited to the extremities. Scars around the trunk also can become tight and sti ff. When a scar occurs over the trunk or anterior chest, severe and chronic postural changes can result which may cause secondary spinal deformity or altered respiratory function. A badly scarred perineum or buttocks may make sitting in one position for pr olonged period painful and difficult. 14.8. In the absence of a standardised universally acceptable method with respect to disability arising as a result of Acid Attacks, the following method is proposed for calculating permanent physical impairment as it has been in use for the past few years. Part of the body affected Deficit % of permanent physical impairment Scalp and vault including forehead Disfigurement alone Deformity or full thickness loss 5% 10% Eyebrows (Ri ght & Left) Loss of part of one or both Total loss of one or both 3% each 5% each Eye lids - Upper Lower Skin disfigurement alone Deformity or full thickness loss Skin disfigurement alone Deformity or full thickness loss 3% each 5% eac h 2% each 3% each External Ear (Pinna) Skin disfigurement alone Deformity due to full thickness involvement of skin and cartilage without obliteration of meatus Deformity due to full thick ness involvement of skin and cartilage with obliteration of meatus 2% each 3% each 5% each Nose Skin cover disfigurement alone Deformity due to full thickness involvement with both nares (nostrils) 3% 5% Lips Skin cover disfigurement one lip alone Deformity or full thickness loss of one lip alone Deformity due to involvement of both lips leading to contracture 3% 5% 10% Cheek and lateral area of face Skin disfigurement Deformity or full thickness loss 5% each side 10% each side Neck Skin cover disfigurement Deformity due to involvement of skin, muscle, or deeper tissue 5% 10% Breast (Female) Only skin cover disfigurement Deformity resulting in loss of function due to involvement of 5% each i) skin, areola & nipple ii) Skin, areo la, nipple & parenchyma 10% each 15% each Front of trunk & abdomen excluding breast Only skin cov er disfigurement Deformity or full thickness loss 5% 10% Total back Only skin cover disfigurement Deformity or full thickness loss 5% 10% Groins Only skin cover disfigurement Deformity or full thickness loss 2% each 5% each Buttocks Only skin cover disfigurement Deformity or full thickness loss 3% each 5% each Genitalia Skin loss resulting in mild deformity Severe contracture of orifices or sloughing of urethra or severe deformi ty of penis 7% 20% Thigh Only skin cover disfigurement Deformity or full thickness loss 3% each 5% each Lower leg Only skin cover disfigurement Deformity or full thickness loss 3% each 5% each Foot Only skin cover disfigurement Deformity or full thickness loss 3% each 5% each Upper arm Only skin cover disfigurement Deformity or full thickness loss 3% each 5% each Forearm Only skin cover disfigurement Deformity or full thickness loss 3% each 5% each Hand Only skin cover disfigurement Deformity or full thickness loss 5% each 10% each Mouth: Sometimes, the lips may be partly or totally destroyed, exposing the teeth. Eating and speaking can become difficult. Up to 20% Esophagus: Inhalation of acid vapors creating upper digestive tract problems Up to 20% Respiratory involvement: Acid vapors creating upper respiratory problems Up to 20% In addition, any significant respiratory function impai rment, if present, is to be assessed based on the guidelines as given in respective section and weightage added depending on severity of involvement. 14.9. The total % of permanent impairment/disability will not exceed 100%. SECTION H: 15. Cerebral Palsy affected Persons with disabilities. 15.1. Definition - "cerebral palsy" means a group of non -progressive neurological condition affecting body movements and muscle coordination, caused by damage to one or more specific areas of the brain, usually occurring before, during or shortly after birth. 15.2. In the absence of any universally accepted method or scale, the Gross Motor Function Classification System (GMFCS) is proposed for use while evaluating and certifying cerebral palsy affected individuals. It is based on self - initiated movement, with emphasis on sitting, transfers, and mobility. This is a five -level classification system, and the primary criterion is that the distinctions between levels must be meaningful in daily life. Distinctions are based on functional limitations, the need for hand -held mobility devices (such as walkers, crutches, or canes) or wheeled mobility, and to a much lesser extent, quality of movement. For assessment of extent of permanent physical impairments in Cerebral Palsy, the following method was proposed a few years ago, and has been used in India since January 2018. GMFCS Level Description of Mobility status % of permanent physical impairment Level I • Can walk indoors and outdoors and climb stairs without using hands for support • Can perform usual activities such as running and jumping • Has decreased speed, balance and coordination Less than 40% Level II • Can climb stairs with a railing • Has difficulty with uneven surfaces, inclines or in crowds • Has only minima l ability to run or jump 40 to 50% Level III • Walks with assistive mobility devices indoors and outdoors on level surfaces • May be able to climb stairs using a railing • May propel a manual wheelchair and need assistance for long distances or uneven surfaces 51 to 60% Level IV • Walking ability severely limited even with assistive devices • Uses wheelchairs most of the time and may propel own power wheelchair • Standing transfers, with or without assistance 61 to 79% Level V • Has physical imp airments that restrict voluntary control of movement • Ability to maintain head and neck position against gravity restricted • Impaired in all areas of motor function • Cannot sit or stand independently, even with adaptive equipment • Cannot independen tly walk but may be able to use powered mobility 80% or more Manual Ability Classification System (MACS) 15.3. The Manual Ability Classification System (MACS) describes how persons with cerebral palsy (CP) use their hands to handle objects in daily activ ities. MACS describes five levels. The levels are based on the person’sself - initiated ability to handle objects and their need for assistance or adaptation to perform manual activities in everyday life. 15.4. MACS spans the entire spectrum of functional l imitations found among persons with cerebral palsy and covers various sub -diagnoses. 15.5. Level I include persons with minor limitations, while persons with severe functional limitations will usually be found at levels IV and V. MACS levels are stable ov er time. 15.6. The certifying medical authority needs to know the following to use MACS: For assessment of extent of permanent physical impairments in Cerebral Palsy, the following method was proposed a few years ago, and has been used in India since Jan uary 2018. The person’s ability to handle objects in important daily activities, for example during play and leisure, eating and dressing, is to be considered as per the following scale: Level I. Handles objects easily and successfully. At most, limitati ons in the ease of performing manual asks requiring speed and accuracy. However, any limitations in manual abilities do not restrict independence in daily activities. Level II. Handles most objects but with somewhat reduced quality and/or speed of achieve ment. Certain activities may be avoided or be achieved with some difficulty; alternative ways of performance might be used but manual abilities do not usually restrict independence in daily activities. Level III. Handles objects with difficulty; needs hel p to prepare and/or modify activities. The performance is slow and achieved with limited success regarding quality and quantity. Activities are performed independently if they have been set up or adapted. Level IV. Handles a limited selection of easily ma naged objects in adapted situations. Performs parts of activities with effort and with limited success. Requires continuous support and assistance and/or adapted equipment, for even partial achievement of the activity. Level V. Does not handle objects and has severely limited ability to perform even simple actions. Requires total assistance. MACS Level Features % of permanent physical impairment Level I Handles objects easily and successfully. 20% Level II Handles most objects but with somewhat reduced quality and/or speed of achievement. 30% Level III Handles objects with difficulty; needs help to prepare and/or modify activities. 40% Level IV Handles a limited selection of easily managed objects in adapted situations. 55% Level V Does not handle obj ects and has severely limited ability to perform even simple actions. 70% Note: (i) In the absence of a universally accepted method, in individuals with disability due to Cerebral Palsy, both GMFCS and MACS are used, and the final extent of disability is com puted by applying the combining formula as given below and also frequently mentioned in these guidelines. (ii) In a person with cerebral palsy, other than problems of movement or posture, there may be other limitations such as visual impairment, hearing impair ment, speech impairment, epilepsy, mental sub -normality (low IQ) etc. These are assessed separately as per the guidelines and the final disability % calculated using the combining formula: where a = higher value, b = lower value. (iii) Total permanent ph ysical impairment/disability % will not exceed 100%. (iv) Disability is to be certified in relation to the whole body. SECTION I: 16. Leprosy Cured Persons with disabilities 16.1. Definition: "leprosy cured person" means a person who has been cured of lepro sy but is suffering from - (i) loss of sensation in hands or feet as well as loss of sensation and paresis in the eye and eyelid but with no manifest deformity. (ii) manifest deformity and paresis but having sufficient mobility in their hands and feet to e nable them to engage in normal economic activity. (iii) extreme physical deformity as well as advanced age which prevents him/her from undertaking any gainful occupation, and the expression "leprosy cured" shall be construed accordingly. 16.2. WHO grading of disability in Leprosy: Highest grade for each eye or hand or foot = 2. E= Eyes, H= Hands, F= Feet Maximum EHF sum score = 12. Grade Eyes Hands Feet 0 No eye problem due to leprosy; no evidence of visual loss No anaesthesia, no visible deformity or damage No anaesthesia, no visible deformity or damage 1 Eye problem due to leprosy present, but vision not severely affected as a result of these (vision: 6/60 or better; can count fingers at 6 metres). Anaesthesia present, but no visible deformity or da mage Anaesthesia present, but no visible deformity or damage 2 Severe visual impairment (vision worse than 6/60, inability to count fingers at 6 metres). Also includes lagophthalmos, iridocyclitis and corneal opacities Visible deformity or damage present (such as cracks/wounds, claw fingers, wrist drop, contractures, amputation etc.) Visible deformity or damage present (such as cracks/wounds, claw toes, foot drop, contractures, amputation etc.) 16.3. For sensory testing of hands and feet, light touch (j ust enough to indent the skin very slightly) of the tip of ball point pen is recommended. 16.4. For testing loss of corneal sensation, light touch of the clean cotton wisp from the lateral side is recommended. It is also to be noted whether blinking of th e eyes is normal or not. 16.5. Muscle power is tested clinically by Voluntary Muscle testing of commonly examined peripheral nerves and graded as per the Medical Research Council, London Scale. EHF (Eyes, Hands, Feet) Grade Score is calculated. The high er the Score, greater the Disability. Maximum EHF Score possible to assign is 12. EHF Score % of permanent physical impairment 0 to 1 Up to 20% 2 to 3 21 to 40% 4 to 5 41 to 60% 6 to 7 61 to 70% 8 to 9 71 to 80% 10 to 11 81 to 90% 12 91 to 100% 16.6. In the absence of a standardised universally acceptable method with respect to disability in Leprosy -cured individuals, the following method is proposed for calculating permanent physical impairment as it has been in use for the past few years. 16.7. In a leprosy cured person with involvement of dominant upper extremity (mostly right hand), additional 10% weightage is to be given. Total permanent physical impairment/disability % will not exceed 100%. In a leprosy curedpersons, review may be necessary in a few persons if there is a significant change in the clinical condition, after a specified period, such as 5 to 10 years or as decided by the Specified Disability Experts or the designated Medical Board. SECTION J: 17. Guidelines for Evaluation of P PI in cases of Short Stature/Dwarfism: 17.1. Definition: "Dwarfism" means a medical or genetic condition resulting in an exceptionally small person. It is often defined as an adult height of less than 147 centimetres (4 feet 10 inches), regardless of gende r/sex. 17.2. The most common and recognisable form of dwarfism in humans (comprising 70% of cases) is achondroplasia, a genetic disorder whereby the limbs are diminutive. Growth hormone deficiency is responsible for many other cases. There are also several other less common causes. The evaluation of a short statured person shall be considered irrespective of whether it is of proportionate variety (both the arms and torso are unusually small) or disproportionate variety (either short limbs or a short torso) . Intelligence is usually normal, and most persons with dwarfism have a nearly normal life expectancy. People with dwarfism can usually bear children, though there may be additional risks in some cases to the mother or child depending on the underlying con dition or degree of dwarfism. 17.3. In the absence of a standardised universally acceptable method with respect to Dwarfism/Short Stature related disability, the following method is proposed for calculating permanent physical impairment as it has been in u se for the past few years. Every 1" vertical height reduction shall be valued as 4% permanent physical impairment in relation to whole body. Associated skeletal deformities such as contractures or deformities shall be evaluated separately and total percen tage of both shall be added by combining formula. Height of the Adult % of permanent physical impairment 4 feet 10 inches or more Nil 4 feet 9 inches 4% 4 feet 8 inches 8% 4 feet 7 inches 12% 4 feet 6 inches 16% 4 feet 5 inches 20% 4 feet 4 inche s 24% 4 feet 3 inches 28% 4 feet 2 inches 32% 4 feet 1 inch 36% 4 feet 40% 3 feet 11 inches 44% 3 feet 10 inches 48% 3 feet 9 inches 52% 3 feet 8 inches 56% 3 feet 7 inches 60% 3 feet 6 inches 64% 3 feet 5 inches 68% 3 feet 4 inches 72% 3 feet 3 inches 76% 3 feet 2 inches 80% 3 feet 1 inch 84% 3 feet 88% 2 feet 11 inches 92% 2 feet 10 inches 96% 2 feet 9 inches or less 100% SECTION K: 18. Muscular Dystrophy 18.1. Definition: "Muscular dystrophy" means a group of hereditary genetic m uscle disease that weakens the muscles that move the human body and persons with muscular dystrophy have incorrect and missing information in their genes, which prevents them from making the proteins they need for healthy muscles. It is characterised by pr ogressive skeletal muscle weakness, defects in muscle proteins, and the death of muscle cells and tissue. 18.2. In the absence of a standardised universally acceptable method with respect to extent of disability due to Muscular Dystrophy, the following me thod is proposed for calculating permanent physical impairment as it has been in use for the past few years. After detailed clinical examination, each of the features namely, weakness, contractures, scoliosis, cardiac or pulmonary involvement are evaluated and disability is computed based on the criteria for each of these and added to the locomotor disability component, using the combining formula: where ‘a’ is the higher value and ‘b’ is the lower value). Disability is to be expressed in relation t o the whole body. Total % of disability will not exceed 100%. Due to progressive nature of this disease, in general, review may be necessary after a specified period, such as 5 years or more or as decided by the Specified Disability Experts or the design ated Medical Board, or as per the Law. 18.3 Medical Authority*: 18.3.1 The Medical Superintendent or Chief Medical Officer or Civil Surgeon or any other equivalent authority as notified by the State Government shall be the head of the certification board for the purpose of certification of locomotor disability including cerebral palsy, leprosy cured, dwarfism, acid attack victims and muscular dystrophy. The Medical Board shall comprise of: I. Medical Superintendent or Chief Medical Officer or Civil Surgeon, II. Specialist in Physical Medicine and Rehabilitation (PMR), or a Specialist in Orthopaedics if specialist in PMR is not available, III. One specialist doctor as nominated by the Medical Superintendent or the Chief Medical Officer as per the condition of the pers on with disability. Note* - In view of shortage of the specialist doctors resulting in huge pendency in disability assessment, the chairperson (Who compulsorily has to be a Government Doctor e.g. Chief Medical Officer or Civil Surgeon or as specified) of the disability assessment board may, if required, include private medical practitioner(s) (duly qualified in the respective medical domain) as a board member. 18.3.2. Common instruments required for certification of locomotor disability: The most importan t resource is the knowledge and skill of the Members/Experts involved in the process. However, a few items listed below may also be required: a. A measuring tape for measuring – vertical height of the person, degree of chest expansion, shortening of an extremity, or difference in girth of a limb etc., b. Goniometers – small, medium, and large, for measuring range of motion at different joints, c. Hand -held dynamometer, d. A clean cotton piece for testing corneal sensation, e. A ball point pen for testi ng sensory deficit e.g., in leprosy -cured person, f. X-ray films, e.g., in cases with spinal deformity, amputation, club foot, congenital limb deficiency, fractures, arthritis etc Uploaded by 19.1. Definition . –Visual impairment (a) "blindness" means a con dition where a person has any of the following conditions, after best correction — (i) Total absence of sight; or (ii) Visual acuity less than 3/60 (or less than 10/200) by Snellen's chart in better eye with best possible corrections or (iii) Limitation of field of visio n subtending an angle of less than 10 degree in better eye II. VISUAL IMPAIRMENT (b) "Low - vision "means a condition where a person has any of the following conditions, namely: — (i) Visual acuity less than 6/18 (or 20/60) up to 3/60 (or 10/200) by Snellen’s chart in the better eye wit h best possible corrections or (ii) Limitation of the field of vision subtending an angle of less than 40 -degree up to10 -degree in better eye (Refer to table no 1). 19.2. Nature of Certificate: The medical authority will decide whether status of disability is t emporary or permanent. Disability certificate should be issued only in case of permanent Disability. The benefits like reservation in employment, education etc should be restricted to permanently disabled persons only. A permanently disabled person whose c ondition is likely to change in future should be reassessed. The temporary disability certificate shall be issued for visual disabilities when the visual disability is only due to cataract and CSCR (Central serous chorio -retinopathy) 19.3. Visual Impairmen t Certification Criteria and Gradation Vision assessments should be done after best possible correction (medical, surgical or usual/conventional spectacles). The Ophthalmologist shall circle the vision Status and the Percentage Impairment and mark the Disability category accordingly as under: TABLE NO .-1  For visual acuity the line should be read completely in case of partial line read, online below that line should be taken for visual acuity.  If during the assessment, the pat ients’ visual responses are variable or inconsistent with the previous records or clinical findings or diagnosis, then the permanent disability certificate should not be issued, and further investigations should be carried out. Matrix Table No -2 Left Eye Vision [Best Corrected Visual Acuity (BCVA)]) Better eye Best Corrected Worse eye Best Corrected Per cent Impairment Disability category Visual acuity: 6/6 to 6/18 6/6 to 6/18 0% 0 6/24 to 6/60 10% 0 Less than 6/60 to 3/60 20% I Less than 3/60 No Light Perception 30% II (One eyed person) Visual acuity: 6/24 to6/60 Or Visual field less than 40 degrees upto 20 degrees around center of fixation or hemianopia involving macula 6/24 to6/60 40% III a (low vision) Less than 6/60 to 3/60 50% III b (l ow vision) Less than 3/60 to No Light Perception 60% III c (low vision) Visual acuity: Less than 6/60 to 3/60 Or Visual field less than20 degrees upto10 degrees around centre of fixation Lessthan6/60to3/60 70% III d (low vision) Lessthan3/60toNoLight Perception 80% III e (low vision) Visual acuity: Less than 3/60 to 1/60 Or Visual field less than10 -degree around centre of fixation Less than 3/60 to No Light Perception 90% IVa (Blindness) Visual acuity: Only HMCF Only Light Perception, No Light Perce ption Only HMCF Only Light Perception, No Light Perception 100% IV b (Blindness) 6/6 to6/18 6/24 6/36 6/60 3/60 2/60 1/60 HMCF to PL- 6/6 to 6/18 0% 10% 10% 10% 20% 30% 30% 30% 6/24 10% 40% 40% 40% 50% 60% 60% 60% 6/36 10% 40% 40% 40% 50% 60% 60% 60% 6/60 10% 40% 40% 40% 50% 60% 60% 60% 3/60 20% 50% 50% 50% 70% 80% 80% 80% 2/60 30% 60% 60% 60% 80% 90% 90% 90% 1/60 30% 60% 60% 60% 80% 90% 90% 90% HMCF to PL- 30% 60% 60% 60% 80% 90% 90% 100%  Yellow -Right eye is better eye; Brown -Left eye is better eye  Percentage of disability is m arked inside the box corresponding to the visual acuity for both eyes. Matrix Table no -3 Field of Vision around the centre of fixation Left Eye <40°to20° <20°to10° <10° <40° to 20° 40% 50% 60% <20° to 10° 50% 70% 80% <10° 60% 80% 100% Yellow - Right eye is better eye; Brown - Left eye is better eye (only better eye Fields to be taken into account for determining the percentage 19.4. Medical Authority*: The Medical Superintendent or Chief Medical Officer or Civil Surgeon or any other equivalent authorit y as notified by the State Government shall be the head of the certification medical authority for the purpose of certification of hearing disability and speech and language disability. The certification medical authority shall comprise of: I. Medical Superin tendent or Chief Medical Officer or Civil Surgeon or any other equivalent authority as notified the State Government II. Ophthalmologist, III. Ophthalmologist/Optometrist*/ Ophthalmic Assistant* *4 years degree from recognized university Note* - In view of shorta ge of the specialist doctors resulting in huge pendency in disability assessment, the chairperson (Who compulsorily has to be a Government Doctor e.g. Chief Medical Officer or Civil Surgeon or as specified) of the disability assessment board may, if requir ed, include private medical practitioner(s) (duly qualified in the respective medical domain) as a board member. Right Eye Vision [Best Corrected Visual Acuity (BCVA)] Right Eye IIIA. HEARING IMPAIRMENT (DEAF AND HARD OF HEARING) 20.1.1 Definition: (a) “Deaf” mean persons having 70 Db hearing loss in speech frequen cies in both ears; (b) "Hard of hearing” means person having 60Db to 70db hearing loss in speech frequencies in both ears; 20.1.2. Conditions for which Hearing Disability Certificate can be issued: (a) Sensori neural Hearing Loss (b) In cases of permanent/ irreversible mixed hearing loss (e.g. Congenital malformations of external and middle ear, Otosclerosis, Ossicular Chain Discontinuity, Chronic Otitis Media etc.) assessment of hearing disability will be done if no improvement in hearing ability after six months of completion of medical -surgical treatment/ use of appropriate assistive devices. (c) In cases of permanent/ irreversible conductive hearing loss (e.g.,Congenital malformations of external and middle ear, Otosclerosis, Ossicular Chain Discontinuity , Chronic Otitis Media etc.), assessment of hearing disability will be done if no improvement in hearing ability after six months of completion of medical -surgical treatment/use of appropriate assistive devices. 20.2. Guidelines for Assessment: 20.2.1. Mea surement Air Conduction Thresholds (ACT): (a) ACT is to be measured using standard Pure Tone Audiometry by an Audiologist for Right Ear and Left Ear separately. (b) In case of non -reliable Air Conduction Thresholds, additional tests are recommended such as Immittance, Speech audiometry and Auditory Brainstem Response (ABR)/ Auditory Steady State Response (ASSR) Testing. Apart from Click evoked ABR, Tone Burst/Frequency specific Chirp evoked ABR and/ or ASSR using frequency specific Chirp stimuli should be u sed to determine estimated hearing thresholds for 500 Hz, 1000Hz, 2000Hz and 4000Hz for Right ear and Left ear separately. (c) Measuring ACT may be difficult in children aged 3 -5 years. In such cases, Conditioned Pure Tone audiometry/Visual Reinforcement A udiometry (VRA) shall be conducted. ABR & / Auditory Steady State Response (ASSR) testing can be advised for the estimation of ACT in infant and young children. Apart from Click evoked ABR, Tone Burst/Frequency specific Chirp evoked ABR and/or ASSR using f requency specific Chirp stimuli should be used to determine estimated hearing thresholds for 500 Hz, 1000Hz, 2000Hz and 4000Hz for Right ear and Left ear separately. 20.2.2. Computation of Percentage of Hearing Disability: (a) Monaural Percentage of Heari ng Disability (i) Calculate Pure tone average of ACT for 500 Hz, 1000 Hz, 2000 Hz, 4000 Hz for Right Ear and Left ear separately (whenever there is no response at any frequency ACT is to be considered as 95dB). (ii) Monaural percentage of hearing disabilit y is to be calculated as per the ready reckoner given below separately for Right Ear and Left Ear. Monaural PTA in dB % of Disability Monaural PTA in dB % of Disability 0 to 25 0 61 41.71 26 1 62 43.42 27 1 63 45.13 28 1 64 46.84 III. HEARINGIMPAIRMENT AND SPEECH & LANGUAGE DISABILITY 29 1 65 48.55 30 1 66 50.26 31 1 67 51.97 32 1 68 53.68 33 1 69 55.39 34 2 70 57.1 35 3 71 58.81 36 4 72 60.52 37 5 73 62.23 38 6 74 63.94 39 7 75 65.65 40 8 76 67.36 41 9 77 69.07 42 10 78 70.78 43 11 79 72.49 44 12 80 74.2 45 13 81 75.91 46 14 82 77.62 47 15 83 79.33 48 16 84 81.04 49 17 85 82.75 50 18 86 84.46 51 19 87 86.17 52 20 88 87.88 53 21 89 89.59 54 22 90 91.3 55 23 91 93.01 56 24 92 94.72 57 25 93 96.43 58 26 94 98.14 59 27 95 100 60 40 III.B. SPEECH AND LANGUAGE DISABILITY 20.3.1. Definition: "Speech and language disability" means a permanent disability arising out of conditions such as laryngectomy or aphasia affecti ng one or more components of speech and language due to organic or neurological causes 20.3.2. Conditions affecting Speech Components for which Speech Disability certificate can be issued (i) Laryngectomy (assessment for disability after completion of trea tment) (ii) Glossectomy (assessment for disability after completion of treatment) (iii) Bilateral vocal cord paralysis (assessment for disability 9 -12 months’ post onset) Percentage of Hearing Disability = (Better ear% of hearing disability X 5) + (Poorer ear% of hearing disability) (iv) Maxillofacial anomalies (assessment for disability after completion of medical -surgical treatment, use/fitting of prosthetic devices and one year of regular documented speech therapy intervention by RCI Registered Speech Language Pathologists). (v) Dysarthria (assessment for disability after completion of one year of regular documente d speech therapy intervention by RCI Registered Speech Language Pathologists). (vi) Apraxia of Speech (assessment for disability after completion of one year of regular documented speech therapy intervention by RCI Registered Speech Language Pathologists). 20.3.3. Computation of percentage Speech Disability (a) Speech Intelligibility Test : The verbal output of person should be evaluated using Perceptual Speech Intelligibility Rating Scale [AYJNISHD (D), 2022 ](Appendix IV )and percentage of Speech Intelligib ility Affected ( SIA) to be measured based on score as the table given below: Point Scale Description of Speech Sample Percentage of Disability 1 Normal 0-15 2 Can understand without difficulty; however, feel speech is normal 16-30 3 Can understand with little effort occasionally need to ask for repetition 31-39 4 Can understand with concentration and effort especially by sympathetic listener; require a minimum of two or three repetition. 40-55 5 Can understand with difficulty and concentration by fa mily but not others 56-75 6 Can understand with effort if content is known 76-89 7 Cannot understand at all even when content is known 90-100 (b)Voice Test Consensus Auditory Perceptual Evaluation of Voice (CAPE -V) (Appendix -V) or Dysphonia Severity Ind ex (DSI) can be used for measuring percentage of Overall Voice Clarity Affected (OVCA) which includes roughness, breathiness, strain, pitch, and loudness. Average score to be given weighted for the percentage of overall voice clarity affected: Score Percen tage of overall voice clarity affected ( OVCA ) 1 0-15 2 16-30 3 31-39 4 40-55 5 56-75 6 76-89 7 90-100 Percentage of Speech Disability= 2 x Upper range of percentage of SIA+ Upper range of percentage of OVCA 20.4.1. Conditions affecting Langua ge Components for which Language Disability certificate can be issued  Aphasia 20.4.2 . Language Test Western Aphasia Battery (WAB) in Indian languages is to be administered post six months of the onset of the stroke and Aphasia Quotient (AQ) is to be calcul ated as per standard procedure by a Speech Language Pathologist. 20.4.3. Percentage of Language Disability Percentage of Language Disability can be computed directly from the ready reckoner given below by intersection of value for Number in Tens place in W AB score and Number in Unit place in WAB score. For example, if the AQ is 56, intersection of 6 (in column) and 5 (in row) is 40. The Percentage of Language Disability is 40%. Number in Tens Place in WAB Score Number in Unit Place in WAB Score 0 100 98.9 97.8 96.8 95.7 94.6 93.6 92.5 91.4 90.4 1 89.3 88.2 87.2 86.1 85.0 84.0 82.9 81.8 80.8 79.7 2 78.6 77.6 76.5 75.4 74.4 73.3 72.2 71.2 70.1 69.0 3 68.0 66.9 65.8 64.8 63.7 62.6 61.6 60.5 59.4 58.4 4 57.3 56.2 55.2 54.1 53.0 52.0 50.9 49.8 48.8 47.7 5 46.6 45.6 44.5 43.4 42.4 41.3 40.0 39.2 38.1 37.1 6 36.0 34.9 33.9 32.8 31.7 30.7 29.6 28.5 27.5 26.4 7 25.3 24.3 23.2 22.1 21.1 20 18.9 17.9 16.8 15.7 8 14.7 13.6 12.5 11.5 10.4 09.3 8.3 07.2 06.1 05.1 9 4.0 2.9 1.9 0.8 00.0 00.0 00.0 00.0 00.0 00.0 20.5. Medical Authority*: The Medical Superintendent or Chief Medical Officer or Civil Surgeon or any other equivalent authority as notified by the State Government shall be the head of the certification medical authority for the purpose of certification of hearing disability and speech & language disability. The certification medical authority shall comprise of: I. Medical Superintendent or Chief Medical Officer or Civil Surgeon or any other equivalent authority. II. ENT Specialist III. Audiologist/Speech Language Pathologist/ Audiometric Assistant (Should be BASLP or equivalent which is RCI recognised). In addition to above,  In case of Speech disability due to "Dysarthria" and "Apraxia of Speech" and Language Disability due to “Aphasia” , Neurologist/Paediatric Neurologist shall be included in the Medical Board.  In case of Speech Disability in the "Maxillofacial anomalies", Plastic Surgeon/Oral -Maxillofacial Surgeon/Paediatric Surgeon shall be included in the Medical Board. Note* - In view of shortage of the specialist doctors resulting in huge pendency in disability assessment, the chairperson (Who compulsorily has to be a Government Doctor e.g. Chief Medical Officer or Civil Surgeon or as specified) of the disability assessment board m ay, if required, include private medical practitioner(s) (duly qualified in the respective medical domain) as a board member. 21.1 Neuro -developmental Disorders Neuro -developmental disorders are diverse group of chronic disorders. They begin at any time during the development process (including conception, birth, and growth) up to 22 years of age and last throughout an individual’s lifetime. Children with neuro -developmental disorders have difficulty in any of the domains: Language and speech, Motor skills, Behaviour, Memory, Learning including Intellectual Disability (ID), Specific Learning Disorder (SLD) and Autism Spectrum Disorder (ASD). Section A: Intellectual Disability 21.2. Definition Intellectual disability is defined as a condition characte rized by significant limitations both in intellectual functioning (reasoning, learning, problem -solving) and in adaptive behavior, with onset in the developmental period, and which covers a range of daily social skills and skills required for activities of daily living. The term intellectual disability will be reserved for children with age 5 years and above (≥5 years). The children with a similar disability and an age less than 5 years will be designated as having Global Developmental Delay. 21.3. Screenin g All children on follow -up in a healthcare facility should be screened for developmental delay/ intellectual disability. The identified children/ adolescent should be referred for a detailed assessment to a pediatrician/ psychiatrist. They should also be screened for associated co -morbidities, viz., hearing impairment, visual impairment, locomotor impairment, epilepsy and other co -morbid conditions (Figure 1). 21.4. Diagnosis The screened children should be referred to clinical/ rehabilitative psychologis ts for assessment. Age less than 5 years Children less than 5 years of age should be assessed for VSMS (( Appendix -VI) and the VSMS profile should be used to decide for the domains involved. These children, if having impairment on VSMS will be diagnosed as Global Developmental Delay. Age ≥5 years Children ≥5 years should be assessed for adaptive functioning and IQ. The tools which have to be used for adaptive functioning and IQ may be VSMS/BKT/WISC -IV/MISIC/WISC/NIEPID Indian Test of Intelligence ( Appendix VII & Appendix –VIIIa, b, c ). 21.5. Disability Calculation Irrespective of age, the disability calculation will be done based on the VSMS score. The disability levels will be as under: Serial Number VSMS Score Disability Percentage IV. Intellectua l Disability, Specific Learning Disorder, Autism Spectrum Disorder a. 0-20: Profound 100% disability b. 21 to 35: Severe 90% disability c. 36 to 54: Moderate 75% disability d. 55-69: Mild 50% disability e. 70-84: Borderline 25% disability 21.6. Age for certification The minimum age for certification will be one (01) completed year. Children above one year and up to the age of 5 years shall be given a diagnosis of Global Developmental Delay. Children above the age of 5 years shall be given a diagnosis and certificate of Intellectual Disability. 21.7. Medical Authority* The Medical Superintendent or Chief Medical Officer or Civil Surgeon or any other equivalent authority as notified by the State Government shall be the head of the Medical Board. The Authority shall comprise of: a. Medical Superintendent or Chief Medical Officer or Civil Surgeon or any other equivalent authority as notified by the State Government b. Pediatrician or Pediatric Neurologist (where available) or Developmental Pediatrician (where available) or physician (if age >18 years) c. Psychiatrist or Child and Adolescent Psychiatrist (wherever available) d. Clinical or Rehabil itation Psychologist Note* - In view of shortage of the specialist doctors resulting in huge pendency in disability assessment, the chairperson (Who compulsorily has to be a Government Doctor e.g. Chief Medical Officer or Civil Surgeon or as specified) of the disability assessment board may, if required, include private medical practitioner(s) (duly qualified in the respective medical domain) as a board member. 21.8. Validity of Certificate: Temporary certificate for children less than 5 years: Below the ag e of five years, a temporary certificate will be issued with a diagnosis of Global Developmental Delay. This certificate will be valid till the age of 05 years. For children more than 5 years: The certificates issued at ≥5 years of age will have the following validity (a) Children with 80% or more disability: After initial certification after the age of 5 years, re -assessment and re - certification will be done at an age of 18 years. The certificate issued at 18 years or mo re of age will be valid lifelong. (b) Children with disability <80%: The certificate will mention a renewal age. The certificate issued after the age of 5 years will have to be renewed at the age of 10 years and 18 years. The certificate issued at 18 years or more of age will be valid lifelong. Figure 1. Details of assessment and disability calculation for a child with global developmental delay/ intellectual disability Section B: Specific Learning Disability 22.1. Definition Specific learning disabilit ies refers to a heterogeneous group of developmental learning disorders wherein there is a deficit in processing language, spoken or written, that may manifest itself as a difficulty to comprehend, speak, read, write, spell, or to do mathematical calculati ons and includes such conditions as perceptual disabilities, dyslexia, dysgraphia, dyscalculia, dyspraxia, and developmental aphasia. 22.2. Screening The screening shall be performed by teachers of the public and private school at eight years of age or in Class III, whichever is earlier. The screening test is illustrated in Form A. The child should be referred for further assessment if the reply to screening shows three or more answers in “frequently” column. Every school (public and private) shall have a screening committee headed by the principal of the school. After applying the screening test, if an anomaly is detected, the teacher should bring it to the notice of principal and screening committee of the school. The teachers shall interview the parents to assess their involvement and motivation regarding their child’s education. If the parents are motivated and screening questionnaire suggests specific learning disability, then child should be referred for further assessment. The child should be referred to pediatrician/ pediatric Neurologist/ developmental pediatrician/ psychiatrist for specific learning disability assessment by the principal of the school with the recommendations of the screening committee endorsed. 22.3. Diagnosis The diagnosis will re quire a team approach involving a pediatrician (or pediatric neurologist or developmental pediatrician), psychiatrist (or child and adolescent psychiatrist) and clinical or rehabilitation psychologist (Figure 2). This would involve three steps: Step 1: Cli nical Assessment 1(a). Assessment by a pediatrician: The pediatrician (or pediatric Neurologist or developmental pediatrician, where available) will do the initial assessment. This will involve a detailed clinical examination including neurological examina tion, and vision and hearing assessment. It has to be ensured that the child has normal visual acuity and hearing before proceeding to next step. Formal age -appropriate testing tools should be used to assess vision and hearing. 1(b). Assessment by Psychiat rist: The assessment by Psychiatrist should be done to rule out associated comorbidities and mimics including emotional and behavioral disorders. Step 2: IQ Assessment After the clinical assessments, IQ testing should be performed by child/ clinical psycho logists using MISIC/ WISC - IV/NIEPID Indian Test of Intelligence/BKT/VSMS (Appendix - VII&VIII). If the IQ is determined to be more than 85, then step 3 will be applied. Step 3: Specific Learning Disability Assessment This would involve application of specif ic psychometric tests for diagnosing specific learning disability. National Institute for Mental Health and Neurosciences (NIMHANS) battery (Appendix -IX). or Grade Level Assessment Device (GLAD) (Appendix - X) shall be applied for diagnostic test for SLD. T hese tools will be used across all ages till such time until new scales are developed and validated for older children and adults. A diagnosis of specific learning disability will be given if all of the following criteria are fulfilled  IQ 85 or more  No vi sion and /or hearing impairment which are likely to affect learning.  No emotional and behavioral disorders mimicking SLD  Presence of adequate opportunity for learning with proper motivation  The child is functioning at 3 standard deviations below the curren t class on NIMHANS battery or his/ her GLAD score is below 40%, for the child’s current class level. 22.4. Medical Authority* The Medical Superintendent or Chief Medical Officer or Civil Surgeon or any other equivalent authority as notified by the State Go vernment shall be the head of the Medical Board. The Authority shall comprise of: I. Medical Superintendent or Chief Medical Officer or Civil Surgeon or any other equivalent authority as notified by the State Government II. Pediatrician or Pediatric Neurologist ( where available) or Developmental Pediatrician (where available) III. Psychiatrist or Child and Adolescent Psychiatrist (wherever available) IV. Clinical or Rehabilitation Psychologist (line) Note* - In view of shortage of the specialist doctors resulting in huge p endency in disability assessment, the chairperson (Who compulsorily has to be a Government Doctor e.g. Chief Medical Officer or Civil Surgeon or as specified) of the disability assessment board may, if required, include private medical practitioner(s) (dul y qualified in the respective medical domain) as a board member. 22.5. Validity of Certificate: The certification will be done for children aged eight years and above only. The child will have to undergo repeat certification during the academic year of Cla ss X and academic year of Class XII, if required. The certificate issued at 18 years or more will be valid life -long. FORM A Screening for Learning Disability ___________________________________________________ Name of student: _____________ ____________ _ Date of birth: _____________ Class: _____________ Name of School: _____________ _____________ How long has the teacher been familiar with the student: _____________ ___________________________________________________ Dear Teacher, Have you observed in your day -to-day teaching that the student has some of the following difficulties? Answer with ‘X’ in appropriate column S. No. Statement Never Some times Frequently 1. Makes mistakes in reading like - Omits words - Substitutes words - Adds words - Skips li nes - Reads sentences repeatedly 2. Can answer questions orally but has difficulty in writing answers Or Oral work is better than written work 3. Writes or reads figures or letters in wrong way, for example, 15 for 51, 6 for 9, b for d 4. Difficulty in differentiating letter sounds for vowels and blends, example “E” for “I’; “ch” for “sh”; 5. Difficulty in rhyming words and repeating them 6. Reads in past tense, while the text is written in present tense or vice -versa; example replaces “is” with “was” 7. Changes the sequence of alphabets while reading; example says “neerg” instead of “green” 8. Replaces long words with compact one; example “musim” for “museum” 9. Difficulty in taking notes or copying them from blackboard and books 10. Confu sion with mathematics symbols (+, -, X, divide) while solving word problems and mathematics computation 11. Difficulty in spellings 12. Difficulties with spatial orientation, and direction; example confusion between left and right, east and west, up and down etc 13. Misplaces upper and lower case letters, example BeTTer, n for N, i for I 14. Writes in mirror images; example “ram” - “mar” *Sometimes: upto 6 -7 times in 2 -3 months ** Frequently: More than 7 times in 2 -3 months Figure 2. Details o f assessment for a child with specific learning disability SECTION C: Autism Spectrum Disorder 23.1. Definition Autism Spectrum Disorder is a lifelong neurological condition typically appearing in the first three years of life that is marked by pervasive impairments in the areas of social skills and communication, often associated with hyper -or- hypo -reactivity to sensory input; unusual interest in stereotypical rituals or behaviors; and may or may not be accompanied by intellectual impairment. 23.2. Diagn osis The diagnosis of autism spectrum disorder will be established by the DSM -5-based AIIMS -modified INCLEN diagnostic tool for ASD (Appendix - XI). The Indian Scale of Assessment of Autism will be utilized for the calculation of disability among children ≥6 years. 23.3. Disability Calculation Children <6years All children with an autism spectrum disorder in the age group <6 years will be assessed a nd given the disability of 60 to 79% (Moderate Autism). They will be re -assessed at the age of ≥6 years for severity -based disability calculation as per Indian Scale of Assessment of Autism (Appendix - XII). Children/ adolescents ≥6 years The severity -based disability calculation for autism spectrum disorder will be based on the Indian Scale of Assessment of Autism. The disability levels will be as per Table 1. Table 1. Disability percentage for children with autism spectrum disorder Serial Number Indian Sca le of Assessment of Autism Score Disability Percentage a) Mild Autism (ISAA Score 70 to 106) 40 to 59% disability b) Moderate Autism (ISAA Score (107 to 153) 60 to 79% disability c) Severe Autism (ISAA Score >153) ≥80% disability 23.4. Medical Authority*: The Medical Superintendent, Chief Medical Officer, Civil Surgeon, or any other equivalent authority, as notified by the State Government, shall be the head of the Medical Board. The Board shall comprise of: I. Medica l Superintendent, or Chief Medical Officer, or Civil Surgeon or any other equivalent authority as notified by the State Government II. Pediatrician or Pediatric Neurologist (where available) or Developmental Pediatrician (where available) or physician if age > 18 years (MD Internal Medicine or Family Medicine) III. Psychiatrist or Child and Adolescent Psychiatrist (where available) IV. Psychologist (Clinical/ rehabilitation) Note* - In view of shortage of the specialist doctors resulting in huge pendency in disability as sessment, the chairperson (Who compulsorily has to be a Government Doctor e.g. Chief Medical Officer or Civil Surgeon or as specified) of the disability assessment board may, if required, include private medical practitioner(s) (duly qualified in the respe ctive medical domain) as a board member. 23.5. Validity of Certificate: Children <6 years: For children certified below the age of six years, the certificate will be temporary. These children will need reassessment between the age of 6 and 7 years for re -certification and calculation of disability. Children ≥6 years and <18 years: For children who are more than 6 years and less than 18 years, the validity will be as below: After initial certification where a disability of > 40% has been certified, reasses sment and re -certification will be done at the age of 18 years. The certificate issued at 18 years of age will be valid lifelong. Adolescents ≥18 years: For patients >18 years, the disability certificate issued after the age of 18 years will be permanent. 24.1. Definition: "Mental Illness" means a substantial disorder of thinking, mood, perception, orientation, or memory that grossly impairs judgment, behaviour, capacity to recognise reality or ability to meet the ordinary demands of life but does not i nclude mental retardation which is a condition of arrested or incomplete development of mind of a person, specially characterised by sub -normality of intelligence. 24.2. Diagnosis: A. The examination process will consist of components as required namely, cli nical assessment, IDEAS scale and/or IQ assessment. V. Mental Illness B. Indian Disability Evaluation and Assessment Scale (IDEAS) administration ( Appendix - XIII) is to be used for mental illness (If required). C. In some cases, where there is suspicion of intellectual deficits or additional intellectual evaluation is required for any reason, Standardised IQ test may be carried out as per prescribed standards in Intellectual Disability Guidelines. D. In cases where the mental behavioural condition requires only IDEAS, then only IDEA S can be administered, and degree of disability certified. E. In cases wherein, there is both intellectual disability and mental illness disability, the person may be classified as having multiple disability and certificate issued accordingly by the responsib le Medical Board. F. The duration of the mental illness should be determined from the onset of the mental illness. For certifying permanent disability, a minimum duration of at least two years of mental illness is required. 24.3. Validity of Certificate: A. For any mental illness with duration of less than two years, only certificate with time validity may be allowed, the degree depending on the extent of disability. In case the disability is severe or profound, the medical board may consider permanent certifica tion. B. For persons with mental illness (PWMI), who have not received standard of care treatment only disability certificate with time validity up to two years may be issued by the board. C. The disability board may recommend for treatment from any mental heal th establishment (MHE) and then may issue permanent disability certificate only after the PWMI has received the treatment for adequate duration as determined by the Board. D. Permanent Disability Certification will be issued based on assessment of the residua l disability despite appropriate evidence -based treatment as documented on medical records E. Treatment naïve patients of Mental Illness/their caregivers must be advised to seek appropriate treatment to empower them and advised to seek disability certificatio n of disability despite adequate treatment. F. For persons with Mental Illness who have taken psychiatric treatment but do not have any treatment records, disability certificate with time validity may be issued with advice to seek appropriate psychiatric trea tment, preserve medical records and repeat disability certification after 2 years. 24.4. MEDICAL AUTHORITY*: The Medical Superintendent, Chief Medical Officer, Civil Surgeon, or any other equivalent authority, as notified by the State Government, shall be the head of the Medical Board. The Board shall comprise of: I. Medical Superintendent, or Chief Medical Officer, or Civil Surgeon or any other equivalent authority as notified by the State Government II. Psychiatrist III. Psychiatrist/Physician or RCI registered Clin ical Psychologist/Rehab Psychologist/Psychiatric social worker (wherever required Psychological Assessment report from RCI registered Psychologist obtained in last three months). Note* - In view of shortage of the specialist doctors resulting in huge pende ncy in disability assessment, the chairperson (Who compulsorily has to be a Government Doctor e.g. Chief Medical Officer or Civil Surgeon or as specified) of the disability assessment board may, if required, include private medical practitioner(s) (duly qu alified in the respective medical domain) as a board member. 25.1 Guidelines for Evaluation of Physical Impairments in Neurological Conditions . Basic Guidelines 1. Assessment in neurological conditions is not the assessment of disease but the assessment of its effects, i.e., clinical manifestations. VI. CHRONIC NEUROLOGICAL CONDITIONS 2. These guidelines should only be used for central and upper motor neuron lesions. 3. Normally any neurological assessment for the purpose of certification has to be done six months after the onset of disease howe ver exact time period is to be decided by the Medical Doctor who is evaluating the case and reassessment after two years from the first assessment for the permanent certification. 4. Total percentage of physical impairment in any neurological condition shall not exceed 100%. 5. In mixed cases the highest score will be taken into consideration. The lower score will be added to it by the help of combining formula: Where a = higher value and b = lower value 6. Additional 10% will be given for involvement of dom inant upper extremity. 7. Additional weightage up to 10% can be given for loss of sensation in each extremity but the total physical impairment should not exceed 100%. 8. Neurological conditions which are reversible and without sequelae are not certifiable. Onl y neurological conditions which are permanent are certifiable. If need be, in specific cases, are evaluation of disability can be done after a period of one year. 9. The disability certificate should mention name of the Chronic Neurological Condition. (Clinic al Diagnosis/Name of the disease, the nature, and the extent of disability as far as possible). 10. Permanent disability certificate can be issued in a few irreversible/progressive cases, if required for certain specific needs/requirements by the person with d isability such as on directions from a Court. If needed in specific cases, a re -evaluation of disability may be required after a reasonable and specified period such as 5 years or more or as decided by the Specified Disability Experts in the designated Med ical Board or as specified by Law. 11. . The disability certificate shall clearly mention the name of the Chronic Neurological Conditions 25.2 Chronic Neurological Diseases of CNS . Definition: Any impairment in the neurological function lasting > 3 months. The following diseases may be assessed under the category of “LOCOMOTOR DISABILITY” Locomotor disorders resulting from the following 1. Ataxia 2. Cerebrovascular Accident (Stroke) 3. Chronic Movement disorders (Neuronal Brain Iron accumulation (NBIA), Parkinson’s Di sease, Wilson Disease, Genetic Dystonias, Huntington’s chorea, Subacute Sclerosing Panencephalitis (SSPE), Multiple system atrophy, Progressive supranuclearpalsy,Tourette’s syndrome (Choreoathetosis/Tremors/Dystonias/Parkinsonism/Myoclonus/Tremors/Chronic Tics) 4. Hereditary & acquired neuropathy 5. Motor Neuron disease 6. Myopathy Other disorders; 1. Neurodegenerative disorders 2 Relapsing Recurring demyelinating disorders (such as Multiple Sclerosis, Neuromyelitis optica spectrum disorder, Myelin oligodendrocyte a ntibody disease). 3. Paraneoplastic Syndromes 4. Chronic Drug Refractory Epilepsy * Note: All these disorders will be assessed based on the presence of locomotor disability as well as presence of other clinical features in the form of spasticity, cognit ion (IQ/DQ), vision & hearing and cranial nerve involvement. 25.3 Basis of Assessment . It is estimated by reference to the physical or mental capacity for performance of the necessary functions of a normal life, which would be expected in a healthy person of the same age and sex. It should represent the extent to which the impairment has reduced that functional capacity. It is determined solely on general functional capacity. Consideration should not be given to the member's capacity or incapacity to foll ow his own or any specific trade or occupation. Assessment should be based on measurement of objective parameters which can be used to quantify the functional loss. For arriving at a proper assessment of impairment, it is necessary to elicit a conclusiv e history, carry out a thorough clinical examination and all relevant laboratory and radiological investigations. It has to be determined whether the impairment is temporary (2 years) or permanent and also the degree of impairment as it pertains to the fun ctional capacity. In practice disability assessments for paediatric patients may be kept as temporary and re assessment may be asked for within 3 -5 years. For adult patients’ temporary disability assessment may be given for disorders which are of acquired nature and are expected to improve with therapy. For genetic disorders with relentless progression a permanent disability may be offered. The physical examination and laboratory tests must be relied upon more than ever to substantiate or disprove symptoms and complaints. The evaluation of an impairment based on measurement of function is a sound procedure by means of which a reliable medical opinion may be reached by reason or logic rather than by intuition, conjecture or assumption. The functional assess ment being parameter based and derived from guidelines of assessment based upon RPwD Act of 2016, GARP and other international disease specific guidelines will be provided by the concerned specialist. 25.4 The following chronic neurological diseases will be assessed under LOCOMOTOR DISABILITY. 25.4.1. Stroke Stroke leads to multiple levels of neural axis being involved and contributing to impairment - ranging from speech/language, cranial nerve, motor, sensory, locomotor and cerebellar dysfunction. The tot al functional impairment is assessed as per RPwD act of 2016.The modified Rankin Scale (mRS ) is a commonly used scale for measuring the degree of impairment or dependence in the daily activities of people who have suffered a stroke or other causes of neuro logical impairment (Para 11.2 refers) Apart from mRS which chiefly reflects the impairment due to motor functions, additional impairment caused due to certain disabling deficits like visual or sectoral losses, aphasia or dysarthria etc. may be calculated f rom the relevant sections and a composite impairment be arrived at (not exceeding 100%). 25.4.2. Chronic Progressive Ataxia (Sensory or Cerebellar) Severity of Ataxia Physical Impairment Score 0 -10Mild (Detected on examination) 25% Score 11 -20Moderate 50% Score 21 -30Severe 75% Score 31 -40Very Severe 100% For a very objective assessment Scale for the assessment and rating of ataxia (SARA) may be used. (Appendix - XIV). Mean values from each one of the eight items are summed to obtain the total score. The tota l scores range from 0 (no ataxia) to 40 (severe ataxia). **NOTE: SARA scores in children less than 8 years to be interpreted with caution (Only to be given after the age of 8 years). There is no percentage scoring available as per SARA score. Disability pe rcentage as per the scores is to facilitate objective and uniform calculation. 25.4.3. Locomotor disorders resulting from movements disorders due to chronic neurologic diseases. The following movement disorders should be assessed in patients with Chronic Movemen t disorders like Neuronal Brain Iron Accumulation, Wilson disease, Huntington’s chorea, Genetic Dystonia etc. Assessment of dystonia requires objective scoring. Severity of Dystonia Physical impairment Mild (present occasionally) 25% Moderate (present most time of the day) 50% Severe (present continually) 75% 25.4.4. Chorea: In the absence of a standardised universally acceptable method with respect to chorea related disability, the following may be adapted for calculating permanent physical impairment. Seve rity of Chorea Physical impairment Mild Individual can use the involved extremity for activities of daily living (ADL) involving gross movements but has mild difficulty in fine movements Non dominant limb -20% Dominant limb -30% Moderate Individual can use the involved extremity for activities of daily living (ADL) with mild difficulty involving gross movements but has moderate difficulty in fine movements Non dominant limb -30% Dominant limb -40% Severe Individual requires assistance in the involved extrem ity for activities of daily living (ADL) with severe difficulty involving gross movements and has severe difficulty in fine movements Non dominant limb -50% Dominant limb -60% 25.4.5. Parkinsonism - Definition “Parkinson's disease " means a progressive disease of the nervous system marked by tremor, muscular rigidity, and slow, imprecise movement, chiefly affecting middle -aged and elderly people associated with degeneration of the basal ganglia of the brain and a deficiency of the neurotransmitter dopamine. For asses sment of Parkinson’s disease (PD) the degree of impairment may be calculated from modified Hoehn and Yar scale which grades the degree of functional impairment in case of PD .(Appendix -XV) Stage Modified Hoehn and Yahr Scale Physical Impairment 1 Unilater al involvement only 10% 1.5 Unilateral and axial involvement 20% 2 Bilateral involvement without impairment of balance 30% 2.5 Mild bilateral disease with recovery on pull test 40% 3 Mild to moderate bilateral disease; some postural instability; physic ally independent 50% 4 Severe impairment ; still able to walk or stand unassisted 75% 5 Wheelchair bound or bedridden unless aided 100% 25.4.6. For Motor Neuron Disease like Amyotrophic lateral sclerosis: Functional rating scale for ALS (Appendix -XVI) may be app lied as Functional score Percentage of physical impairment 0-15 Severe 80 -100% 16-30 Moderate 60 -79% 29-40 Mild 40 -59% 40-48 Very mild<40% 25.4.7. For Neuropathy & Myopathy the following assessment may be used Functional ability Percentage of physical impairm ent No significant impairment Able to carry out all usual activities, despite some symptoms <40% Mild impairment 40-50% Able to look after own affairs without assistance, but unable to carry out all usual activities Moderate Impairment Requires help but able to walk unassisted 51-60% Severe impairment Requires constant nursing care including use of assisted respiratory devices and is bed ridden >80% 25.4.8. Bladder dysfunction may be assessed under the broad heading of Chronic Neurological Disease Extent/Natu re of Bladder Function Deficit Percentage of physical impairment Mild (Hesitancy, Frequency) * 20% Moderate (Precipitancy)* 30% Severe (occasional but recurrent incontinence)* 40% Very severe (Retention/Total incontinence)* 50% *Definitions of bladder dysfunction Terms Definitions Frequency  Increased frequency is defined as those children who void  8 per day  Decreased frequency is defined as those children who void  3 per day Urgency Sudden and unexpected experience of an immediate and compelling need to void. This term is not applicable before the attainment of bladder control Hesitancy Difficulty in initiating voiding when the child is ready to void Precipitancy Also known as urinary incontinence. Defined as involuntary leakage of urine 25.4.9. Scorin g method for disability in epilepsy Severity of disability Numbers of convulsion Disability percentage Mild One convulsion only Nil Moderate 1-5/months 25 Severe 6-10/months 50 Very severe >10/months 75 25.4.10. Cognitive dysfunction - In children assessment o f cognition will be by an IQ score assessed on standard scores by the Clinical Psychologist. 25.4.11. Dementia: The percentage disability for dementia is to be assessed as per IDEAS scale. 25.5. Multiple sclerosis " means an inflammatory, nervous system disease in which the myelin sheaths around the axons of nerve cells of the brain and spinal cord are damaged, leading to demyelination and affecting the ability of nerve cells in the brain and spinal cord to communicate with each other. 25.6. The impairment caused due to chroni c neurological conditions including Multiple Sclerosis are multi - dimensional involving manifestation in muscular skeleton system, dementia,and also psycho -social behaviour. Therefore, holistic multi -axial assessment is required as follows - i The impairm ent in Musculo -skeletal system on account of these conditions shall be assessed in terms of guidelines relating to assessment of locomotor impairment due to chronic neurological conditions as in Locomotor Disability assessment as mentioned in the Section I ii. Visual impairment assessment as mentioned in the Section II iii. Hearing impairment assessment as mentioned in Section III A iv. Cranial Nerve Involvement (Other than Vision & hearing Type of Cranial Nerve Degree of Impairment Isolated Motor Crani al Nerve 20% for each nerve Isolated Sensory Cranial Nerve 10% for each nerve v. Speech and Language assessment disability as mentioned in Section IIIB vi. Intellectual Disability assessment as mentioned in Section IV vii. psychosocial disability (mental illness) assessment as in Sectio V Comprehensive impairment on account of all these conditions shall then be calculated by using the formula: where “x” is the composite percentage due to different disabling conditions accompanying Parkins on’s disease/Multiple Sclerosis/Other chronic neurological conditions. “a” is the percentage disability with higher score and “b” is the percentage disability with lower score. However, the maximum total percentage of multiple disabilities shall not exce ed 100%. 25.7 Medical Authority*: The Medical Superintendent or Chief Medical Officer or Civil Surgeon or any other equivalent authority as notified by the State Government shall be the head of the certification authority with the following two other me mbers: a. Paediatrician/ Paediatric Neurologist for patients aged ≤18 yrs; Physician (Medicinespecialist)/ Neurologist for patients aged >18 yrs b. Specialist in Physical Medicine and Rehabilitation (PMR) or in case of non -availability of PMR Specialist, a Spec ialist in Orthopaedics, for certifying locomotor disability component. c. Psychiatrist for mental illness due to chronic neurological conditions d. Trained psychologist (RCI certified clinical or rehabilitation) e. A and B are mandatory and C and D will be coopt ed as the case may demand Note* - In view of shortage of the specialist doctors resulting in huge pendency in disability assessment, the chairperson (Who compulsorily has to be a Government Doctor e.g. Chief Medical Officer or Civil Surgeon or as specified ) of the disability assessment board may, if required, include private medical practitioner(s) (duly qualified in the respective medical domain) as a board member. Diseases covered: A. Hemophilia B. Thalassemia C. Sickle Cell Disorders Background The inherited blood disorders at present covered by the RPwD Act, 2016 include severe Hemophilia A or B; Thalassemia major, and Homozygous sickle cell disease . All of these lead to serious and permanent health problems that are progressive over the person's lifetime. Th e persons with these disorders have a permanent disability that can lead to adverse complications and are progressive. These persons require lifelong treatment to survive and VII. DISABILITY CAUSED DUE TO BLOOD DISORDERS x manage their disease. With good treatment, some improvement in their symptom burd en will happen, but even with good treatment complications because of their disease or their treatment will still occur. They require regular checkups and it adversely affects their educational pursuits and employment. They need family support to avail the essential treatment on a regular basis. Even with the standard of care treatment available in India, all persons with blood disorders will experience limitations because of the disease, suffer the risk of complications, and reduced life expectancy. Hence benchmark disability of 40% is assigned to the patients fulfilling the diagnostic criteria of severe hemophilia, thalassemia major, homozygous sickle cell disease and severe forms of compound heterozygous sickle cell syndromes (sickle -beta Thalassemia and sickle -Hb D). The terminology Transfusion dependent thalassemia (TDT) and non - transfusion dependent thalassemia (NTDT) is currently being used by most haematologists. All the disability are not related to transfusion alone and these terms may not be used by some not familiar with this terminology, hence we kept older terminology as well. The disability is deemed to be permanent and hence, a certificate once issued should be valid till a reassessment is requested by the patient or medical authority, which w ill be necessitated when the patient receives a curative treatment like gene therapy, gene editing, or Hematopoietic stem cell transplant or when new novel drugs become available. All diagnosis reports should ideally be from a government laboratory, or a s tandard laboratory; following these guidelines will avoid discrepancy. If serious complications are present, or found on the disability assessment, then such persons should be referred for appropriate therapy to control these problems and prevent further p rogression. Individuals with blood disorder -related disabilities will be eligible for support mandated for individuals with high dependency needs if they meet the existing criteria for high dependency person. Person with blood disorder related disability having high support needs means a person with Benchmark Disability who needs intense support - physical, psychological or otherwise, to carry out activities of daily living, access facilities/services, and to take decisions. SECTION A: HEMOPHILIA 26.1 DISA BILITY ASSESSMENT AND CERTIFICATION GUIDELINES FOR HEMOPHILIA Hemophilia A and B are hereditary hemorrhagic disorders characterized by deficiency or dysfunction of coagulation protein factors VIII and IX, respectively. Recurrent joint and muscle bleeds occ ur and this leads to severe and progressive musculoskeletal damage. Existing treatment relies on replacement therapy with clotting factors, either at the time of bleeding (i.e., on demand) or as part of a prophylactic schedule. New non - factor agents and e xtended half - life clotting factors are developed but not frequently used in the present date due to costs and availability. Regular use of these products can help prevent injury and reduce disability. Patient with baseline clotting factor levels of less t han 2 % are associated with major and even life - threatening bleeds. All hemophilia patients with less than 5 percent factor levels should be provided benchmark disability of 40%. For the purpose of disability certification, criteria include a diagnosed cas e of HEMOPHILIA, with history of two or more bleeds in the MAJOR JOINTS* OR one episode of INTRACRANIAL BLEED OR one episode of MUSCLE BLEED and clotting factor VIII or IX level less than 5% is considered to have benchmark disability of 40 %. 26.2 What is HEMOPHILIA? “Hemophilia” is an x linked inherited bleeding disorder. The disease is characterized by impairment of the normal clotting ability of blood so that even a minor injury or even a tooth extraction may result in fatal bleeding. Patients with sev ere hemophilia can even bleed spontaneously without any trauma. The disease is seen in males and rarely in females. Hemophilia is an inherited bleeding disorder with an X -linked recessive inheritance in 2/3 of families and new spontaneous mutation seen in 1/3 of cases. Factor VIII deficiency causes Hemophilia A and the deficiency of factor IX leads to Hemophilia B. The severity of the deficiency leads to the bleeding phenotype. Patients with less than 5 percent of either Factor VIII or IX have spontaneous bleeding episodes into the joints and muscles, these lead to deformity and disability. These patients can even have life - threatening bleeds into the brain or neck. Rarely mucosal bleeds like gastro -intestinal, oral, urinary tract etc. 26.3. Type of cert ificate ● Permanent certificate to be issued to all Hemophilia disease patients who fit the above criteria for certification. ● The disease is permanent and progressive in nature. ● With respect to permanent disabilities, the reassessment, if requested by PwD s hall be considered after five years if progression is noted. ● The individual would no longer be eligible for disability certificate post successful treatment with gene therapy/ gene editing (whenever applicable). 26.4. Investigations for the basis of diagn osis of HEMOPHILIA and supporting documentation of need for treatment Confirmatory Test and documentation: (See checklist at end of document) 1) A prolonged APTT report with factor assay. This is essential to document the deficiency of Factor VIII or Facto r IX; and the degree of deficiency is required for eligibility criteria to be met under this disability heading. If no reports are available then after a suitable washout period a repeat recent test report from an approved standard laboratory will be requ ired to give a disability certificate 2) Documentation of treatment for hemophilia with a clotting factor or other available treatment, or physiotherapy records or documentation of bleeds and radiology records demonstrating joint bleeds or damage. 3. Facto r VIII or IX level report Documented evidence of History of bleeding due to clotting factor deficiency - Major joints (ankle, knee, hip, elbow and shoulder joints) Muscle bleeds, intracranial bleeds, bleeding during injury or surgery Table 1 Disability s core assignment to patients with hemophilia (Blood disorder) Disability Score (%) Measured Factor VIII or IX level Clinical Criteria$ Select only one 1. 1 5 5-50% (factor VIII or IX) History of significant bleeding during injury or surgery BUT no defor mity and no severe chronic pain# due to the disease 2. 2 20 5-50% (factor VIII or IX) History of significant bleeding during and injury or surgery AND deformity OR severe chronic pain# due to the disease 3. 40 <5% (factor VIII or IX) Hemophilia + Document ation of two or more bleeds in any MAJOR JOINT* or muscles 4. 45 <5% (factor VIII or IX) Hemophilia = with deformity like ONE MAJOR JOINT* AFFECTED like Fixed Flexion Deformity OR significant wasting of muscles around the joint OR contracture OR severe chronic pain# 5. 50 <5% Hemophilia =TWO MAJOR JOINTS* AFFECTED like Fixed Flexion Deformity OR significant wasting of muscles around the joint OR contracture OR severe chronic pain#, OR gastro -intestinal bleeding persistent 6. 55 <5% Hemophilia =THREE OR MORE MAJOR JOINTS* AFFECTED like Fixed Flexion Deformity OR significant wasting of muscles around the joint OR contracture OR severe chronic pain# 7. 60 <5% Hemophilia =Intracranial OR psoas bleed causing neurological sequelae leading to difficulty in usage of ONE limb or presence of a Pseudotumor 8. 65 <5% Hemophilia =Intracranial OR psoas bleed or pseudotumor causing neurological sequelae leading to difficulty in usage of TWO limbs 9. 70 <5% Hemophilia =Can't stand independently BUT can walk, but with the help of ONE crutch 10. 75 <5% Hemophilia =Can't stand independently BUT can walk, but with the help of TWO crutches 11. 80 <5% Hemophilia =Wheelchair bound due to hip OR spine disability OR paralysis of the lower limbs 12. 85 <5% Hemophilia =Wheelch air bound due to hip OR spine disability OR paralysis of the lower limbs AND inability to use the dominant upper limb 13. 90 <5% Hemophilia =Bed bound (confined to bed) AND inability to sit up AND inability to use the dominant upper limb but without vis ion and /or hearing impairment 14. 95 <5% Hemophilia =Bed bound AND inability to move all the four limbs but without vision and /or hearing impairment 15. 100 <5% Hemophilia = Bed bound AND inability to move all the four limbs with vision and /or hearin g impairment Select only one from boxes 1 to 15 Total score = [May add additional score from 16 -18. If additional problems present. add scores given below] If transfusion -transmitted infection (TTI) is present the following additional score w ill be added (Laboratory tests from standard lab (HIV / HBsAg / HBV DNA/ HCV RNA), all patients identified with TTI should be referred to higher centers for treatment). All TTI blood disorder patients must receive standard of care, ask a hematologist / sp ecialist if in doubt about referral. This recommendation is to ensure patients with treatable TTI get appropriate treatment, this is not to discriminate, we want safety of all patients, not merely a test for a score. Select if indicated HIV Infection (o n or off treatment) = 5 HBV Infection (on treatment) = 5 HCV infection (on treatment) = 5 None = 0 Select if indicated 17 # Severe chronic pain denotes a score >100 in the pain scale which has been mentioned in Appendix -XX If the person with Hemophilia has end organ damage e.g., Liver due to transfusion transmitted infections etc. then please refer to the table scoring the liver damage (Appendix XVIII) and the percentage score may be added to the score derived from this table Add pain/ end organ score ( Appendix XVIII,XIX, XX) = Not applicable =0 If indicated 18 If the patient has additional other disabilities like neurologic , vision, hearing -then the final disability percentage will be calculated as per the formula mentioned in section VIII of this doc ument (Multiple Disabilities) .  $ These percentages can in no way be simply added for final certification e.g., do not add Hemophilia score + other disability score (s)  If the person fulfils the criteria of multiple disability, then the two with the higher disability percentage, will be considered for certification. Multiple - disability board assessment Final Total score @ The factor assay report should include the name and age of the person, the name and address of the laboratory, the date of performin g the test and the full name and qualifications of the signatory. Tests from government hospital or standard lab is recommended, NABL if possible is preferred. The report should be available at the time of certification and a copy of the same should be ret ained for the records. Patients should be referred for treatment of transfusion transmitted infections (TTI). If cured of Hepatitis B or C then this score may be reversed. Treatment referral /compliance indicated for all complications found to prevent pro gression of disease. * Major Joints mean ankle, knee, hip, elbow and shoulder joints. SECTION B: THALASSEMIA MAJOR/INTERMEDIA 27.1. DISABILITY ASSESSMENT AND CERTIFICATION GUIDELINES FORTHALASSEMIA MAJOR/INTERMEDIA “Thalassemia” is a group of inherited dis orders characterized by reduced or absent hemoglobin. It is a hereditary hemolyticanemia resulting from a mutation in the hemoglobin genes. Beta -Thalassemia major patients have decreased or no production of beta -globin chains, resulting in severe life -threatening anemia, affecting multiple organs. and is associated with considerable morbidity and mortality. Thalassemia is genotypically divided into Thalassemia Major (TM), Thalassemia Intermedia (TI) and Thalassemia Minor or Trait /carrier according to seve rity. Thalassemia Major (TM) and the severe form of Thalassemia Intermedia (TI) constitute the disease’s major burden as both of these conditions need regular treatment and monitoring. Currently, based on their clinical severity and transfusion requiremen t, these thalassemia syndromes can be classified phenotypically into two main groups; 1. Transfusion -Dependent Thalassemia (TDTs) and 2. Non -Transfusion - Dependent Thalassemia (NTDTs). The persons with TDTs require regular blood transfusion to survive and w ithout adequate transfusion support, they would suffer several complications and a short life span. This category includes patients with β thalassemia major, and some patients of Thalassemia intermedia. For purpose of disability certification, the patients of Thalassemia major and intermedia qualify for benchmark disability of 40 %. Thalassemia minor or trait is a carrier status, such persons have a normal life. Like the beta thalassemia trait or carriers, many persons carry recessive genetic mutations for ma ny other diseases but do not manifest the disease, hence they do not suffer from a disabling condition. Genetic counselling is helpful to reduce the incidence of recessively inherited conditions. Knowing your family history and being aware of the patient’ s mutation status can help prevent the births of children with inherited recessive disorders like thalassemia major. If a family member has thalassemia, then cascade screening of relatives is recommended. Being aware of thalassemia carrier status should be encouraged before marriage or at least before planning pregnancy. The antenatal testing of both mother and father should be done, this is an important public health step for prevention of the thalassemia disease states (TM and TI). Thalassemia major and s ome severe thalassemia intermedia patients are offered matched sibling donor bone marrow transplant also called Hematopoietic stem cell transplant or peripheral blood transplant from a healthy donor. This replaces the blood forming cells of the body and cu res the disease. Now curative treatments like gene therapy and gene editing by various methods are also approved in some countries and may soon be available to Indian patients. When successful curative therapy by any of these or future methods are performe d then the disability certification and scoring will not be applicable to that patient. Rarely the procedure of bone marrow transplant is not curative or the patient may suffer from severe graft versus host disease with organ dysfunction and residual disa bility or the patient suffers from loss of graft also called rejection and continues to need blood transfusions. Then functional disability scoring will be performed using the same scale as for initial disease. A number of clinical complications commonly a ssociated with thalassemia intermedia are uncommon in thalassemia major, including extramedullary hematopoiesis, leg ulcers, and thrombophilia (blood clots). This affects their quality of life and hinders their full and effective participation in society. Thalassemia major 27.2. Beta Thalassemia major is the most severe form of “thalassemia” disorders. Thalassemia major is an inherited disorder characterized by reduced or absent amounts of beta globin production, which is an essential part of hemoglobin It is characterized by severe anaemia requiring regular transfusions to prevent death. The blood transfusions start in infanc y and are required life - long at an interval of 2 -3 weeks. Severe organ dysfunction occurs as a consequence to severe iron overloa d/ transfusion dependent thalassemia These persons require lifelong supportive care and medical monitoring. 27.3. Disability score 40 % 27.4. Type of certificate ● Certificate with permanent validity to be issued to all transfusion dependent Thalassemia m ajor patients. ● Additional scores given if organ involvement or other parameters leading to disability (see Table 2 a). ● The disease is permanent and progressive in nature ● With respect to permanent disabilities, the reassessment, if requested by PwD shall be considered after five years if progression is noted. ● The individual would no longer be eligible for disability certificate post successful treatment with gene therapy/ gene editing (whenever applicable). 27.5. Investigation basis of diagnosis of Thalass emia and supporting documentation of the need for treatment Confirmatory Test and documentation :(See checklist at end of document) 1) Complete Blood Counts (CBC) with HPLC test of the child (pre -transfusion) or HPLC of parents showing thalassemia carrier s tatus. Or molecular mutation test reports if patient is on regular transfusion and no pre transfusion HPLC report and parents not available or if one parent has a silent mutation. 2. Documentation of Regular blood transfusion for Thalassemia major from tr eating canter (Government or Non - Government) and supportive records of other medications e.g., iron chelation medicines, or blood reports serum ferritin, LFT, etc. Overview of Thalassemia intermedia / non transfusion dependent thalassemia (beta thalasse mia intermedia): (blood disorder) Thalassemia Intermedia /NTDT 27.6. What is Thalassemia intermedia? A thalassemia syndrome is characterized by mild to moderate anemia; relative independence from transfusions; prominent splenomegaly and bone deformities; variable degrees of iron overload depending on the severity of anemia and transfusion requirement. The clinical severity may range from almost asymptomatic to similar to thalassemia major -like phenotype 27.7. Disability 40% 27.8. Type of certificate Thalassemia intermedia encompasses a wide clinical spectrum of beta -thalassemia phenotypes. Some thalassemia intermedia patients are almost asymptomatic until they develop complications, whereas others are symptomatic from as young as 2 years of age. A numbe r of clinical complications commonly associated with thalassemia intermedia are rarely seen in thalassemia major, including extramedullary hematopoiesis, leg ulcers, and thrombophilia. Additional scores will be given in case of organ involvement (secondary to iron overload related complications or other disease related sequelae (see table 2 (c). The disease may be progressive in nature and requires regular health check -ups Certification to be reviewed after 5 years if progression is observed by family membe rs or doctor Persons can be reassessed on request of patient or family or doctor’s advice; or when the individual will no longer be eligib le for disability certificate post successful bone marrow transplant or post Gene Therapy or gene editing (whenever av ailable). New drugs that reduce need for transfusions will also impact on disability and some patients may have a reduction or no further need of blood transfusion. 27.9. Investigation basis of diagnosis of Thalassemia intermediaandsupporting documentat ion of need for treatment Confirmatory test and documentation 1. HPLC of the patient (pretransfusion or after a gap of 3 months from last transfusion) and HPLC of parents, is needed. If neither unavailable then molecular mutation tests are required. 2. Do cumentation for chronic anemia, or blood transfusion, and/ or regular healthcare visits for a hydroxyurea or other approved treatment. Documents include daycare /thalassemia clinic/hospital records/ patient diary and supported any blood test reports e.g., like CBC, serum ferritin, LFT etc. 3. Supportive but not necessary - documentation of thrombosis or other complications Table 2 Disability score assignment for organ involvement in patients suffering from thalassemia major TDT / Thalassemiaintermedia NTDT (Blood disorder) ORGAN INVOLVEMENT (# select organ involvement with documentation or physical assessment as given in appendix) Disability score (%) Select ONLY one that applies - (see diagnostic and documentation cri teria 2 a) and 2 b Thalassemia intermedia on regular 2 –3-week blood transfusions = 40% (needs supporting documentation as per thalassemia major) Non-Transfusion dependent thalassemia (NTDT) / Thalassemia intermedia = 30% Frequency of transfus ion (daycare/clinic/hospital or blood bank records of at least 2 years documentation) Less than once a month / infrequent transfusion Once a month Twice a month > 3 per month or 45 ml/kg/month for pediatric patients 0 3 5 8 3 Endocrine Dysfu nction (requires tests reports) Diabetes Mellitus Thyroid Dysfunction Parathyroid Dysfunction Growth abnormality Gonada l dysfunc tion Osteo por- osis 2 2 2 2 2 3 4 Transfusion associated infections # (HIV / HBsAg/ HBV DNA/ HCV RNA) (Hospital Do cumentation of HIV, Hep B infection or Hep C infection. All patients with TTI should be referred for treatment). HIV Infection (On or off treatment) HBV Infection (on treatment) HCV infection (on treatment) Yes No Yes No Yes No 5 0 5 0 5 0 5 *Cardiopulmonary Dysfunction and/ or fatigue (check hemoglobin should be above 9g/dl in transfusion dependent patients or at the steady state (2 measurements of haemoglobin 3 months apart) in NTDT) - AppensixXVII Asymptomatic NYHA Class 1 NYHA Class 2 NYHA Class 3 NYHA Class 4 0 Yes No Yes No Yes No Yes No 1 0 3 0 5 0 8 0 6 Hepatobiliary (see Appendix - XVIII for grading) CTP < 5 points CTP Class A (5-6 points) CTP Class B (7-9 points) CTP Class C (10-15 points) 0 Yes no Yes No Yes No 3 0 5 0 8 0 7. Kidney (see Appendix -XIX for grading) eGFR > 90 eGFR 90 -45 eGFR 45 -15 eGFR less than 15 0 3 5 8 8 Pain PDQ score (Appendix - XX) No or minimal pain PDQ Score (0-10) Mild pain PDQ Score (11 - 70) Moderate PDQ Score (71 -100) Severe PDQ Score (101 - 130) Extre me PDQ Score (131- 150) Yes No Yes No Yes No Yes No Yes No 0 0 2 0 3 0 5 0 8 Total score 1 to 8 = If criteria forother disabilityfulfilled, then assessment as per other disability g uidelines to be performed and patient assessed by multi -disability board (see section VIII). Do not merely add the scores. 9 Neurological Score as per the neurological disability guideline Or not applicable =0 Multiple disability board 10 Locomoto r Score as per the locomotor disability guideline Or not applicable =0 Multiple disability board 11 Other disability - Vision impairment, Hearing impairment, Growth failure Score as per the locomotor disability guideline Or not applicable =0 Multiple disability board Total Final score (Criteria for organ involvement (maximum additional score for any single organ/system involvement will be 8). The cumulative score for organ involvement should be added as a percentage to the baseline 40 perc ent to calculate the percentage of disability. *Cardiac function should be assessed when the patient is hemodynamically stable, and dysfunction is not due to acute anaemia #All patients with TTI or other complications should be referred for appropriate tre atment. Hepatitis B and C therapy is available and persons with positive tests should be referred to government centers for therapy, support for therapy is available, these are curable conditions, prompt treatment can prevent further sequala and complicati ons. If Neurologic, vision, hearing, short stature – we need to use the formula for calculation provided in section VIII for multiple disability calculation. The patient needs review in multiple -disability board. PS: Major Investigations (T2*MRI, DEXA sca n, 2D -ECHO,) are optional, but can be supportive if done. These investigations if submitted should be done in the previous 2 years for validity for certification. Patients with cardiac, pulmonary, hepatic or other complications should be referred for appro priate medical intervention. Scoring is to be done with standard medical treatment, patients not receiving medical care should be advised to take medical treatment before certification wherever possible. A multiple disability board will be required if sco ring for the following organ/system is being given i. Vision impairment ii. Hearing impairment iii. Growth failure iv. Locomotor disability v. Neurological involvement SECTION C: 28. DISABILITY ASSESSMENT AND CERTIFICATION GUIDELINES FOR SICKLE CELL DISEASE (SCD) SYNDROMES Sickle cell anaemia is a multisystem disorder that is caused by a single gene mutation. Nearly every organ in the body can be affected. Characterized by the presence of abnormal erythrocytes damaged by HbS, this variant of normal adult hemoglobin (HbA) is i nherited either from both parents (homozygosity for the HbS gene=HbSS), also sometimes termed homozygous sickle cell disease. Some patients can have symptoms even if they have co -inheritance of HbS from one parent and another hemoglobin variant, such as β -thalassemia or rarely in India with hemoglobin D (HbD) from the other parent. (These disorders are called compound heterozygote states example sickle - beta thalassemia fer from high symptom burden and complications. People who inherit one sickle cell gene and one normal gene have sickle cell trait (SCT) and are called sickle cell carriers. People with SCT usually do not have any of the symptoms of sickle cell disease (SC D), but they can pass the trait on to their children. The sickle cell trait in the present guideline will get a score of 5 %. Although early diagnosis, penicillin prophylaxis, blood transfusion, transcranial Doppler imaging, hydroxyurea, and hematopoietic stem -cell transplantation can dramatically improve survival and quality of life for patients with sickle cell disease, they continue to require lifelong care and support. For the purpose of disability certification, the patients with sickle cell anemia /Ho mozygous sickle cell disease (HbSS)will qualify for a benchmark disability of 40%. Also, the patients who suffer from sickle -beta thalassemia documented clinically severe phenotype. Sickle cell trait persons are a carrier sta tus, such persons have a normal life, many persons carry recessive genetic mutations for many other diseases but do not manifest the disease hence they do not suffer from a disabling condition. Knowing the family history, and being aware of the patient’s m utation status can help prevent the births of children with inherited recessive disorders like sickle cell anemia and sickle cell compound heterozygote states like sickle beta thalassemia and sickle HbD disease. Testing and being aware of sickle cell carri er status should be encouraged and antenatal testing of both mother and father should be done. Bone marrow transplant also called hematopoietic stem cell transplant (HSCT) can be recommended as per standard guidelines for sickle cell patients with severe d isease and complications who do not respond to standard available therapy even with good compliance and adequate doses. This procedure should be performed in centers with experience in transplantation. In rare cases, the post bone marrow transplant is not curative and the patient may suffer from graft versus host disease with organ dysfunction and residual disability or the patient suffers from loss of graft and needs medicines to prevent crises or blood transfusions. Then functional disability scoring will be performed using the same scale as for sickle cell disease. The newer curative therapies are on the horizon such as gene therapy, gene editing and alternate donor hematopoietic stem cell transplant as well as possibility of new novel medicines that alt er the disease. Once these are available and applied, then those who are cured of their disease or disability, will not be entitled to disability certificate. An overview of sickle cell disease (blood disorder) disability information . 28.1. Type of disab ility Sickle cell disease syndromes (Homozygous sickle cell disease, sickle beta thalassemia and sickle with HbD disease) 28.2 What is Sickle cell disease? “Sickle cell” is a hemolytic disorder characterised by chronic anemia, painful events, and vario us complications due to associated tissue and organ damage; “hemolytic” refers to the destruction of the cell membrane of red blood cells resulting i n the release of hemoglobin. 28.3 Sickle cell disease is caused by a variant hemoglobin disorder. The abno rmal hemoglobin results in hemolysis, sickling of red blood cells that lead to pain, and organ dysfunction and increased risk of infections. These patients have poor qualit y of life due to crises and organ damage. The patients inherit this disorder which i s an autosomal recessive disease. The parents of these patients may be sickling carriers or trait, some siblings may also be carriers and they also do not need any treatment. Some patients may need blood transfusion support, but this is required in only i n some patients, patients can suffer Vaso - occlusive crises even if no blood transfusions are needed. 28.4. Disability score 40%. 28.5. Type of certificate ● A certificate with permanent validity shall be issued to all Sickle cell disease patients ● The disease is permanent and progressive in nature ● With respect to permanent disabilities, the reassessment, if requested by PwD shall be considered after five years if progression is noted. ● The individual would no longer be eligible for disability certificat e post successful treatment with gene therapy/ gene editing (whenever applicable). 28.6. Investigation basis of diagnosis of SCD and supporting documentation of need for treatment Confirmatory Test and documentation : 1. HPLC test of the patient (not tran sfused in last 3 months) or both parents HPLC showing HbS carrier status in both parents and symptoms in the patient. 2. Documentation of treatment for crises, and hospitalization for complications. Or documentation of regular treatment with hydroxyurea o r other approved treatment etc. or records of blood transfusions or complications like Vaso -occlusive crises (VOC) from the sickle cell treating centre/ daycare/hospital (government or non - Government) (If HPLC not available of patient or even parents -then documented government recognized tests like hemoglobin electrophoresis or government recognized point of care test &the presence of medical reports or records of treatment for sickle cell disease and / or physical evidence of sickle cell disease complicat ions or test reports of current SCD related complications) Overview of sickle cell disease syndromes 28.7. What is Compound heterozygous Sickle cell disease? Hemoglobinopathy in which the sickle mutation is inherited in combination with another globin gene mutation (affecting alpha globin, beta globin, or gamma globin). These syndromes may have different clinical severity compared with homozygous sickle mutation (HbSS). 28.8. Disability score Compound heterozygous Sickle cell disease which has a severe phenotype – HbSβ and HbSD or HbSC 40 % Other Compound heterozygous Sickle cell disease 30 % 28.9. Type of certificate  A certificate with permanent validity shall be issued to all who suffer from compound  Heterozygote states of HbSβ and HbSD, rarely see n in India.  The disease may be progressive and requires regular health check -ups  With respect to permanent disabilities, the reassessment, if requested by PwD shall be considered after five years if progression is noted.  The individual would no longer be e ligible for disability certificate post successful treatment with gene therapy/ gene editing (whenever applicable).  The individual would no longer be eligible for disability certificate post successful bone marrow transplant or post Gene Therapy or Gene ed iting (whenever available). 28.10. Investigation for basis of diagnosis of SCD and supporting documentation of need for treatment or presence of complications Confirmatory Test and documentation : 1. HPLC test of the patient (pre -transfusion or not transf used in last 3 months). If on regular transfusion support and no HPLC tests are available then either the mutation test of patient or HPLC of both parents showing documented hemoglobinopathy or variant haemoglobin. If neither available or possible then mut ation test will be needed. 2. Documentation of treatment for crises, and hospitalization for complications. Or documentation of chronic anaemia or documented VOC with regular treatment with hydroxyurea or other treatment etc. Or records of blood transfus ions from the sickle cell treating centre/ day care/hospital (government or non -government). Or Documentation of sickle cell disease related complications physical and tests reports. Patients require Hydroxyurea, folic acid, immunizations, and penicilli n prophylaxis during childhood. Good medical care and monitoring reduce frequency of pain crises, and may decrease the complications or may delay the development of complications. Some patients may require infrequent or even regular blood transfusions. Hem atopoietic stem cell transplant (HSCT) also called bone marrow transplant is curative but is best for younger children without organ compromise, but with the presence of complications that justify the risks associated with HSCT. Complications of the condi tioning medicines used for HSCT lead to infections in the peri -transplant period. The other complications of transplant are graft versus host disease, veno -occlusive disease of the liver, and skin and immune problems. Rarely secondary cancers can develop. Organ damage caused by the disease is usually not reversible by HSCT. Adequate counselling for realistic outcome expectations is required . Table 3 Disability score assignment for patients suffering from Sickle cell disease (Blood disorder) Select ONE that applies – (see documentation table 3 a) and 3b) Disability score (%) 1 Homozygous sickle cell disease (SCD)/ sickle cell anemia/ HbSS= 40% Compound Sickle cell syndromes Sickle disease syndromes of either Hb sickle beta -thalassemia OR Hb sickl e D= 40% Other compound heterozygote sickle cell syndromes =30% 2 Pain (chronic pain includes backpain, priapism, avascular necrosis (AVN), or any other sickle disease - associated pain) PDQ score (Appendix - XX) No or minimal pain PDQ Score (0-10) Mild pain PDQ Score (11 - 70) Moderate PDQ Score (71-100) Severe PDQ Score (101-130) Extreme PDQ Score (131-150) 0 2 3 5 8 3. Blood transfusion requirement (daycare/ clinic/hospital/blood bank records report at least 2 years documentation and CBC more than 6 months apart) More than 3 days of transfusion per year Or Alloimmunization 5 5 4 Endocrine Dysfunction Diabetes Mellitus Thyroid Dysfunction Parathyroid Dysfunction Growth abnormality Gonadal dysfunction Osteopo rosis 2 2 2 2 2 3 5 Transfusion associated infections # (HIV/ HBsAg/ HBV DNA/ HCV RNA) (Hospital Documentation of HIV, Hep B infection or Hep C infection or Treatment documentation) All patients diagnosed with TTI shoul d be referred for treatment HIV Infection HBV Infection (on therapy) HCV infection (on therapy) 5 5 5 6. *Cardiopulmonary Dysfunction and /or fatigue (checkhemoglobin is at steady state) – examine for cardiac failure, cardiac hemosidero sis, pulmonary arterial Hypertension, chronic lung disease (see Appendix - XVII for how to grade) Asymptom atic NYHA Class 1 NYHA Class 2 NYHA Class 3 NYHA Class 4 0 1 3 5 8 7 Hepato -biliary dysfunction (see Appendix -XVIII for how to grade) CTP < 5 points CTP Class A (5-6 points) CTP Class B (7-9 points) CTP Class C (10-15 points) 0 3 5 8 9. Kidney dysfunction (see Appendix -XIX for how to grade) eGFR > 90 eGFR 90-45 eGFR 45 -15 eGFR less than 15 0 3 5 8 Total score 1 -9 If mul tiple disability (see section VIII)does not only add score, use formula provided for calculation, if several disability criteria fulfilled then the two disabilities with maximum scores used. Send patient to multiple disability board for complete assessment . 10 Neurological complication Physical assessment (Stroke, Neurocognitive impairment) (Imaging with CT/MRI – supportive if available) or cognitive impairment /MR scoring as per recent Gazette updated guidelines. Multiple disability board Score as pe r the neurological disability guideline Or Not applicable=0 11 Locomotor (AVN, paralysis, osteomyelitis etc.) Multiple disability board Score as per the locomotor disability guideline Or Not applicable=0 12 Ophthalmological complication Multiple disability board Diminished vision As per the visual disability assessment Or Not applicable=0 Total Final score *Cardiac function should be assessed when the patient is hemodynamically stable, and dysfunction is not due to acute anaemia Criter ia for organ involvement (maximum additional score for any single organ/system involvement will be 8) #All patients with TTI or other complications should be referred for appropriate treatment. Hepatitis B and C therapy is available and persons with positi ve tests should be referred to government centers for curative therapy, support for therapy is available. If Neurologic, vision, hearing, short stature – we need to use formula for calculation provided in for multiple disability calculation. The patient ne eds review in multiple -disability board. If multiple disabilities are present - then the total is as per the formula given in. 29.1. Requirement for the multispecialty board if following organ/system involvement is assessed 1. Vision impairment 2. Growth failure 3. Locomotor disability 4. Neurological involvement cognitive impairment 5. Hearing impairment 29.2. Medical Authority*: Certifying authority (from Government or others) for certification and evaluation of disability due to blood disorder shall comprise of the fol lowing: - (a) Chairperson -Chief District Medical Officer or the Chief Medical Officer or Medical Superintendent of the hospital. (b) Members - i. Treating doctor Hematologist (adult or pediatric) or General Medicine or Paediatricianor General physician or as the case may be and the availability of experts. ii. PMR expert or Orthopaedic surgeon, if required. iii. Other Specialists: In case of sequelae relating to visual abnormality, hearing problem, cerebral dysfunction, etc. In case of limitation of availability of any expert, which ever additional experts are available can be included. iv. End organ damage (if doubt or difficulty in assessment) then only if needed additional specialist may be included as per the discretion of chairperson. But undue delay or inconvenience to patient is to be avoided. Note* - In view of shortage of the specialist doctors resulting in huge pendency in disability assessment, the chairperson (Who compulsorily has to be a Government Doctor e.g. Chief Medical Officer or Civil Surgeon or as specif ied) of the disability assessment board may, if required, include private medical practitioner(s) (duly qualified in the respective medical domain) as a board member. A Benchmark disability of 40% is assigned to the patients fulfilling the diagnostic crit eria of severe hemophilia, thalassemia major or intermedia, transfusion -dependent thalassemia intermedia, homozygous sickle cell disease, and severe forms of compound heterozygous sickle cell syndromes (Sickle -Beta Thalassemia and Sickle -HbD). With respect to permanent disabilities, the reassessment, if requested by PwD shall be considered after five years if progression is noted (as per the format given below). The individual would no longer be eligible for disability certificate post successful treatment with gene therapy/ gene editing (whenever applicable). Application for reassessment of disability (To be submitted to the certifying authority which issued the existing certificate or the certifying authority at the current place of residence of the appli cant with disability) (1) Name : ________________ __________________ _________________ (as mentioned in the existing certificate of disability) (2) Father's Name : ___________________ Mother's Name: ________________ (3) Date of Birth : __________/______ ______/_____________ (Date) (Month) (Year) (4) Sex: Male/Female/Transgender__________________ (5) Address: (a) Permanent address : (b) Current address, if the applicant has shifted outside the jurisdiction of the certifying authority of the existing certificate of disability (Please enclose proof thereof (e.g. transfer of the parent/ legal guardian/ shifting of residence (allotment of house/ rent agreement, any other relevant document) : __________________ __________________ __________________ _________ ________________________________________________ (d) Contact details of the person with disability or legal guardian or the person who can be contacted when required : Mob/telephone number :_______________Email Id, if available :___________ (6) Type of di sability : (7) Percentage of disability : (8) Name and address of the hospital/ certifying authority which issued the existing certificate of disability (enclose a copy of the existing certificate of disability) : (9) Reason for reassessment : (Please stri ke off the reasons that are not applicable) (i) Validity of my existing certificate has expired on___________ (ii) Validity of my existing certificate will be expiring on _______________ (iii) My disability has worsened (iv) My disability has improved (v) I am no longer eligible for disability certificate post successful bone marrow transplant or post Gene Therapy conducted on______________________(Please enclose the copy of the certificate/ record pertaining to transplant/ gene therapy / gene editin g duly signed by the treating doctor). (10) Declaration: I hereby declare that all particulars stated above are true to the best of my knowledge and belief, and no material information has been concealed or misstated. I further state that if any inaccur acy is detected in the application at any stage, I shall be liable to forfeiture of any benefits derived and other action as per law. ________________________ (signature or left thumb impression of the person with disability or of his/her legal guardian in case of persons with multiple disabilities, etc) Date : _________________ Place: __________________ Enclosures: 1. Copy of existing certificate of disability. 2. Copy of the certificate/ record pertaining to successful bone marrow transplant or Gene T herapy duly signed by the treating doctor. 3. Proof of change of residence {Please see Sl. Number (5) (b)}. In case of an inmate of a residential institution for persons with disabilities or destitute, etc., a certificate of residence from head of such ins titution be enclosed. 4. Two recent passport size photographs. (For office use only) Upon reassessment of the disability: (i) A fresh certificate of disability with _________percentage of disability (mention type of disability) issued on ___________________ ____and the existing disability certificate dated__________________________has been cancelled. (ii) Issuance of fresh certificate of disability is not considered necessary. Signature of issuing authority Official Stamp Date: ______________________ Place: ____ __________________ HEMOPHILIA Checklist: 1. Factor VIII or IX level: (The factor assay report should include the person's name and age, the laboratory's name and address, the date of performing the test, and the full name and qualifications of the signatory. The report should be available at the time of certification and a copy of the same should be retained for the records) 2. History of bleeding: a. Major joints ( ankle, knee, hip, elbow, and shoulder joints) b. Muscle bleeds c. Intracranial bleeds d. Bleeding during injur y or surgery 3. Joint Status: a. Fixed Flexion Deformity b. Significant wasting of muscles around the joint c. Contracture 4. Severity of Chronic Pain 5. Ambulatory Status a. Use of crutches b. Use of Wheelchair c. Bedbound 6. Neurological sequelae 7. Transfusion Transmitted Infections 8. Multiple disability board assessment for persons with additional disabilities as per guidelines - Vision impairment Hearing impairment Neurological involvement THALASSEMIA Disease states Checklist: 1. Complete Blood Counts (CBC) with HPLC test of the child ( pretransfusion) or HPLC of both parents showing thalassemia carrier in both parents or molecular test report. In case of thalassemia syndromes HPLC or molecular tests of patient or if transfused of parents. ( The HPLC/molecular report should include the per son's name and age, the laboratory's name and address, the date of performing the test, and the full name and qualifications of the signatory. The report should be available at the time of certification and a copy of the same should be retained for the rec ords) 2. Documentation of Regular blood transfusion for Thalassemia major from the treating center (Government or Non - Government), chelation records daycare, outpatient card/diary. In thalassemia intermedia documentation of transfusions 3.Supportive record s of other medications e.g., iron chelation medicines, or blood reports serum ferritin, LFT, etc. Imaging, investigations for complications, records of inpatient or outpatient visits and medication records. 4. Investigation to support Endocrine dysfunction - if any 5. For patients with liver dysfunction - Bilirubin, Albumin, and Prothrombin report (CTP calculation) 6. For patients with Kidney dysfunction - Serum creatinine report (EGFR calculation) 7. Investigation to support transfusion -transmitted infection (HIV, HBV, HCV) 7. NYHA questionnaire 8. PDQ questionnaire 9. Multiple disability board assessment for persons with additional disabilities as per guidelines - Vision impairment Hearing impairment Growth failure Locomotor disability Neurological involvemen t SICKLE CELL DISEASE Checklist: 1. Complete Blood Counts HPLC test of the patient (not transfused in last 3 months) or both parents HPLC showing HbS carrier status and symptoms in the patient for sickle homozygous. Or one parent who is sickle carrier and one who is either beta thalassemia trait (carrier) or HbDcarrier. ( The HPLC/molecular report should include the person's name and age, the laboratory's name and address, the date of performing the test, and the full name and qualifications of the signator y. The report should be available at the time of certification and a copy of the same should be retained for the records). Or government approved Hb electrophoresis/POC with supportive documentation of SCD complications or healthcare visits for treatment. 2. Documentation of treatment for crises, and hospitalization for complications Or documentation of regular treatment with hydroxyurea or other approved etc. or records of blood transfusions from the sickle cell treating centre/ day -care/hospital (governme nt or non -Government) 3. Documentation for blood transfusion 4. Investigation to support -Endocrine dysfunction - if any 5. NYHA questionnaire (Appendix XVII) 6. For patients with liver dysfunction - Bilirubin, Albumin, and Prothrombin report (CTP calculati on) required if claiming . (Appendix XVIII) 7. For patients with Kidney dysfunction - Serum creatinine report (EGFR calculation) will be required if claiming. (Appendix XIX) 8. Investigation to support transfusion -transmitted infection - (HIV, HBV, HCV) 9. PD Q questionnaire (Appendix XX ) 10. Multiple disability (see section VIII) board assessment for persons with additional disabilities as per guidelines - Vision impairment Hearing impairment Growth failure Locomotor disability Neurological involvement, cogniti ve impairment 30.1. DEFINITION Multiple Disabilities means a combination of two or more types of disabilities, namely (i) Locomotor disability (due to any cause including orthopaedic, cardiac, respiratory, burn injuries including burn injuries due to acid exposure/attack) (ii) Visual impairment; (iii) Hearing impairment; (iv) Disability associated with blood related disorders. (v) Developmental disorders (including Global Developmental Delay, Intellectual Disability, Specific Learning Disability, Autis m Spectrum Disorder etc. VIII. MULTIPLE DISABILITIES (vi) Mental illness (vii) Chronic Neurological Disorders ASSESSMENT 30.2. Guidelines for Assessment : The guidelines used for individual disability shall be used for assessment of each specific disability of a person having multipl e disability, in the first instance. Each disability will be evaluated and the degree of disability will be calculated by the notified Specialists. Based on the score received for each disability, they will be graded from the most severe to the least seve re. Only individual disability is more than or equal to 25% will be included for assessment of composite disability due to multiple disabilities. If disability due to a particular disability is given as range and not as a discrete number, then midpoint of the range will be used while calculation of multiple disability. For example, if disability due to mental illness is determined to be moderate i.e., 40 to 70 %, then for calculation of severity of multiple disability, mental disability of 55% will be used . Similarly, if disability due to mental illness is determined to be severe i.e., 71 to 99%, then for calculation of severity of multiple disability, mental disability of 85% will be used. Subsequently, in order to arrive at the composite total percentage due to multiple disabilities, the following combining formula shall be used where “x” is the composite total percentage due to multiple disabilities. “a” is the percentage disability with higher score and “b” is the percentage disability wit h lower score. However, the composite total percentage due to multiple disabilities shall not exceed 100%. Example 1: If the percentage of hearing disability is 40% and the percentage of visual disability is 30%, then by applying the combining formula give n above, the total percentage of multiple disabilities due to hearing disability and visual disability will be calculated as follows: - If a person has more than two disabilities, the above formula will be successively applied beginning with the two disabilities with the highest percentage scores and proceeding further by including the next lower percentage score in the calculation. For example, a person has 3 Disabilities. The percentage score for first disability is the highest equal to “a”; the scor e for the second disability is equal to “b” (second highest); and score for third disability is equal to “c” the lowest score. According to the above formula: (score of disability 1 and 2 = x) This(x) will become (a) for the purpose of calculation of composite disability due to the three disabilities which is y. x =58% x Such calculation will continue till the last disability (with severity score more than or equal to 25%) is covered. The final figur e will be the composite disability due to all the multiple disabilities. The maximum composite disability score is 100%. Example 2: If the percentage of intellectual disability is 50%, percentage of hearing disability is 40% and the percentage of visual d isability is 30%, percentage of locomotor disability is 10%, then by applying the combining formula given above, the total percentage of multiple disabilities will be calculated as follows: - Step 1: intellectual disability 50%, hearing disability 40% Step 2: Composite of intellectual disability and hearing disability 70% plus visual disability 30% Step 3: In case of persons having more than two disabilities, this formula will be applicable starting from disability having the highest percentage a nd taking two disabilities at a time. For the third disability, the resultant of above formula, as applied to the two higher % disabilities, will become the higher disability “x” in the above -mentioned formula. Such calculation will continue till the last disability is covered subject to a maximum of 100%. The certificate due to multiple disabilities will provide the composite disability due to all the multiple disabilities, as above. Further, all the different multiple disabilities will be listed in the di sability certificate. 30.3 MEDICAL AUTHORITY*: There shall be a standing medical board in all government institutions certifying for multiple disability. The standing medical board will convene periodically depending on the applications received for asses sment of multiple disabilities. The standing medical board shall comprise of the following: - (a) The Medical Superintendent or Chief Medical Officer or Civil Surgeon or Plastic Surgeon or any other equivalent authority as notified by the State Government – Chairperson (b) Specialists required for assessing the individual disabilities as per the requirement of respective guidelines for Locomotor disability, Visual impairment, Hearing impairment, Disability associated with blood related disorders, Developmen tal disorders, Mental illness and Chronic Neurological Disorders. Note* - In view of shortage of the specialist doctors resulting in huge pendency in disability assessment, the chairperson (Who compulsorily has to be a Government Doctor e.g. Chief Medical Officer or Civil Surgeon or as specified) of the disability assessment board may, if required, include private medical practitioner(s) (duly qualified in the respective medical domain) as a board member. List of Appendices for Inclusion in the Guidelines for Purpose of Assessing the Extent of Specified Disability in a Person included under the Rights of Persons with Disabilities Act, 2016 (49 of 2016) Appendix No Subject If Free or Copy righted I. Muscle Strength Grading (Medical Research Council - MRC scale) Freely Available** II. Form A Assessment Proforma for Upper Extremity Freely Available** =79% Form B Assessment Proforma for Lower Extremity III. Average Normal Range of Motion (degrees) at Different Joints: Freely Available** IV. Perceptual Speech Intelligibil ity Rating Scale (AYJNISHD, 2022) Freely Available** V. Consensus Auditory Perceptual Evaluation of Voice (CAPE -V) Freely Available** VI. Vineland Social Maturity Scale Copyrighted VII. Malin’s Intelligence Scale for Indian Children (MISIC) Copyrighted VIII. A.WIS C -IV Wechsler’s Scale for Children …… B. Binet Kamat Test ( BKT)…………………….. C. NIEPID IQ TEST ……………………………. Copyrighted Copyrighted Freely Available** IX. NIMHANS Index for SLD Copyrighted X. Grade Level Assessment Device for Children with Learning Problems in School - GLAD (NIEPID) Freely Available** XI. AIIMS -Modified INCLEN Diagnostic Tool for ASD Freely Available** XII. Indian Scale for Assessment of AUTISM Freely Available** XIII. Indian Disability and Assessment Scale(IDEAS) Freely Available** XIV. Scale for the Assessment and Rating of Ataxia (SARA) Freely Available** XV. Modified Hoehn and Yahr Scale Freely Available** XVI. ALS Functional Rating Scale Revised (ALS -FRS-R) Freely Available** XVII. The New York Heart Association (NYHA) Functional Classification Freely Ava ilable** XVIII. CTP Calculation Freely Available** XIX. EGFR Calculation Freely Available** XX. Pain Disability Questionnaire (PDQ) Freely Available** Note**: - The Latest versions of freely available tests should be used as updated from time to time. Sub-committees for Review of Guidelines for Purpose of Assessing the Extent of Specified Disability in a per son included under the Rights if Persons with Disabilities Act, 2016 (49 of 2016) Under the esteemed guidance of Dr. Atul Goel, DGHS, following members worked for the revising of Assessment Guidelines for Disability - I. For Overall Chairperson for All the Sub- Committee: Dr. Sunita Mondal, Dir & Prof, Dept. of Physiology, LHMC & Associated Hospital II. For Overall Member Secretary for All the Sub - Committee: Dr. Rupali Roy, Assistant Director General, Dte.GHS III. Members from Dte.GHS: Dr. Anita Bali Vohra, Deputy D irector General, Dte.GHS Following sub -committees were constituted to revise the Assessment Guidelines for Disability - 1. Sub-Committee on Mental Illness S No Composition Committee Designation 1 Prof. Pankaj Verma HoD, Psychiatry, SJH, Delhi Chairperson 2 Dr. Mina Chandra HoD, Psychiatry, ABVIMS & RMLH Member 3 Dr. Smita Despande Ex Psychiatrist RMLH, Advisor Member 4 Dr. Manushree Gupta Associate Prof. SJH, Delhi Member 5 Ms. Pragati Pandey Asst. Prof. NIMHR Member 6 Dr. Rohit Verma Asst. Prof. Department of Psychiatry, AIIMS, Delhi Member Secretary 2. Sub-Committee on Locomotor Disability S No Composition Committee Designation 1 Dr Sanjay Wadhwa Prof. & HoD, Dept. of PMR, AIIMS Chairperson 2 Dr. Ritu Mazumdar HoD PMR, LHMC & KSCH Member 3 Dr. B.D. Athani Ex Spl. DGHS, Advisor, Member 4 Dr. Satish Kumar HoD Orthopedic, Dr. RMLH Member 5 Dr. Shishir Chandan Prof. Neurology, SJH, Member 6 Dr. Desh Deepak Consultant Respiratory Medicine Member 7 Dr. Ajay Raj Member Prof. Cardiology, Dr. RMLH 8 Dr. Sameek Bhattacharya Burn & Plastic, Dr RML Hospital Member 9 Shri T.D Dhariyal Former Deputy Chief Commissioner, GoI and State Commissioner for PwD, Delhi Member 10 Director SVNIRTAR, Cuttack Member 11 Dr, Suman Badhal Prof, PMR SJH, Member Secretary 3. Sub-Committee on Visual Impairment SL.No. Composition Committee Designation 1 Dr. Ritu Arora Dir. Prof. Ophthalmology Dean, Maulana Azad Medical College, New Delhi Chairperson 2 Dr. Sarita Beri HoD Ophthalmology, LHMC & Asso. Hospital Co-Chairperson 3 Dr. Radhika Tandon Prof. Ophthalmology, AIIMS Member 4 Dr. Rajiv Garg Ex DGHS, Adviser Member Director NIEPVD, Uttarakhand Member 6 Dr Anuj Mehta Prof, Dept of Ophthalmology, Safdarjung Hospital Member Secretary 4. Sub-Committee on Hearing Impairment S. No. Composition Committee Designation 1 Dr. Arunbha Chakravrti Director & Prof, Dept. of ENT, LHMC Chairperson 2 Dr. Isha Preet Tuli Prof. ENT, VMMC & SJH Member 3 Director AYJNISHD, Mumbai Member 4 Mr. Parbhakar Upadhyay Audio Metrician, Dept. of ENT, LHMC Member Secretary 5. Sub-Committee on Developmental Disorder S. No. Composition Committee Designation 1 Dr. Dr. Sheffali Gulati Prof. Child Neurology Division, Department of Chairperson Pediatrics, AIIMS, Delhi 2 Dr. Mina Chandra HoD, Psychiatry, ABVIMS & RMLH Member 3 Dr. Paul Russell Professor & lead Consultant, CMC Vellore, Tamilnadu Member 4 Dr. Sharmila B. Mukharjee Prof. Dept. of Pediatric, LHMC, Delhi Member Director, NIEPID, Secunderabad, Telangana Member 6 Dr. Madhuri Kulkarni Ex Head Dept. of Pediatrics, L.M.M. Medical College, Maharashtra Member 7 Dr. Vishal Sondhi Prof. Department of Pediatrics, AFMC, Pune Member Secretary 6. Sub-Committee on Blood Disorder S. No. Composition Committee Designation 1 Dr. Tulika Seth Prof. Dept. of Hematology, AIIMS, Delhi Chairperson 2 Dr. Dipty Jain Ex HoD, Dept of Pediatrics, GMC, Nagpur Member 3 Dr. Cecil Ross Prof. of Medicine and Hematology, St. Johns Medical College Hospital, Bangalore Member 4 Dr. Prantar Chakraborty Consultant, Clinical Haematology, Vivekananda Institute of Medical Sciences Member 5 Shri TD Dhariyal Former Deputy Chief Commissioner, GoI and State Commissioner for PwD, Delhi Member 6 Dr. Ritika Sud Prof. Medicine LHMC, New Delhi Member 7 Ms. Shobha Tuli President Thalassemic Federation of India, New Delhi Member 8 Shri Gautam Dongre Secretary, National Alliance of Sickle Cell Disease NASCO Member 9 Smt. Vinita Srivastava Advisor, Tribal Health, Ministry of Tribal Affairs Special Invitee 10 Dr. Amitabh Singh Associate Professor, Pediatrics AIIMS, New Delhi Member Secretary 7. Sub-Committee for Chronic Neurological Disorder S. No Composition Committee Designation 1 Dr. Sheffali Gulati Prof. Child Neurology Division, Dept. of Pediatric, AIIMS, Delhi Chairperson 2 Dr. Padma Srivastava HoD, Neurology, AIIMS, Delhi Member 3 Dr. Mina Chandra HoD, Psychiatry, Dr. RML Hospital Member 4 Dr. Gagandeep Singh Prof & HoD, Neurology, Dayanand Medical College & Hospital, Ludhiana Member 5 Dr. Shishir K. Chandan Sr. CMO Safdarjung Hospital, Delhi Member 6 Dr. Anand Principal Consultant & Prof. Dr. RML Hospital Member 7 Dr. Satish V. Khadilkar Dean, Medical Faculty, Bombay Hospital, Institute of Medical Science Member 8 Col. Dr. Aparjita Gupta MD, Pediatric Neurology, Advance Centre for Pediatrics, Army Hospital (R&R) Member Secretary 8. Sub-committee for Multiple Disorder S. No. Composition Committee Designation 1 Dr. Mina Chandra HoD Psychiatry ABVIMS & RMLH, Delhi Chairperson 2 Dr. Sheffali Gulati Prof, Child Neurology Division, Department of Pediatrics, AIIMS, Delhi Member 3 Dr. Ajay Gupta Prof, Dept of Physical Medicine and Rehabilitation, SJH Member 4 Dr. B.D. Athani Ex Spl. DGHS, Advisor Member 5 Dr. Satria Beri HoD Ophthalmology, LHMC & Asso. Hospital Member 6 Dr. Gautam Bir Singh Member Dir. Prof. ENT, LHMC 7 Dr. Alok Sud Director Prof. Dept. of Orthopedics, LHMC Member 8 Shri Shishir Chandan Prof., Neurology, SJH Member Director, NIEPMD, Chennai, Tamil Nadu Member Director, NIEPVD, Uttarakhand Member 11 Dr. Suvarna Alladi HoD, Dept. of Neurology, NIMHANS, Bangalore Member 12 Dr. Sharmila B. Mukherjee Prof. Dept of Pediatric, LHMC Member Secretary Uploaded by Dte. of Printing at Government of India Press, Ring Road, Mayapuri, New Delhi -110064 and Published by the Controller of Publications, Delhi -110054.

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